Press releases & statements

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•  18 December 2012
  Local mum addresses European researchers on newborn screening An East Sussex mum whose son has a life-limiting form of muscular dystrophy has spoken on behalf of families across the UK about her views on screening babies for a rare muscle-wasting condition.
•   7 December 2012
  Statement at close of pro-nuclear transfer IVF consultation The charity supports people affected by muscle-wasting conditions including, mitochondrial disease, and has funded pioneering research over ten years to develop the technique.
•  27 November 2012
  Muscular Dystrophy Campaign response to confirmation that an EU grant to develop an exon-skipping therapy for exon 53 has been awarded The Muscular Dystrophy Campaign’s response to confirmation that an EU grant to develop an exon-skipping therapy for exon 53 has been awarded to a team from the UCL Institute of Child Health led by Professor Francesco Muntoni.
•   5 October 2012
  Muscular Dystrophy Campaign response to preliminary results of Sarepta Therapeutics phase 2b trial of exon skipping drug, Eteplirsen Statement in response to preliminary results of Sarepta Therapeutics phase 2b trial of exon skipping drug, Eteplirsen.
•  17 May 2012
  Registry holds hope for families devastated by myotonic dystrophy Thousands of people affected by a form of muscular dystrophy which devastates entire families are being invited to sign up to a registry.