Limb girdle muscular dystrophies (LGMD)
The limb-girdle group of muscular dystrophies is so called because generally they cause weakness in the shoulder and pelvic girdle, for example the big muscles around the top (proximal) part of arms and legs (hip, thigh and shoulder muscles). Usually weakness of the legs is noticed before that of the arms and usually the muscle of the face are unaffected. If you would like specific information about a type of limb-girdle muscular dystrophy please click: LGMD 1B, LGMD 1C, LGMD 2A, LGMD 2B, LGMD 2I.
The Muscular Dystrophy Campaign provides expert advice and support for individuals living with limb-girdle and their families, and for health professionals. We lead the search for treatments and cures for muscle-wasting conditions.
Our National Conference, taking place on 12 October 2013, will include a limb girdle muscular dystrophy specific workshop, led by Dr Debbie Hicks and Andrea Russell. Find out more and book your place today.
In this section you'll find the latest information about limb-girdle and helpful resources.
The Muscular Dystrophy Campaign supports individuals and families by:
- funding limb-girdle research projects and providing information on research progress
- supporting the training and development of the next generation of scientists and funding clinical trials co-ordinators in the drive towards potential treatments for muscle-wasting conditions
- working with, and providing training and education for, NHS-funded care advisors
- taking a leading role in driving NHS support for neuromuscular networks and spearheading campaigns to improve access and quality of specialist care
- offering advice and information and enabling people to overcome difficulties through our advocacy service
- providing grants towards specialist equipment to help people to live as independently as possible
- helping people to connect with each other through our local Muscle Groups, online via TalkMD, at conferences and events; and through Trailblazers, our national network of young disabled people.
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Subscribe to receive quarterly Target MD and Target Research magazines by post, with news about research and health care, helpful products, social and family issues, and more.
There is a role for everyone in the fight against muscle-wasting conditions. We are a small but strong community of people in the UK and we are determined to win this fight, together.
There are opportunities to get involved in a variety of ways, such as:
- enrolling in the relevant limb-girdle patient registry
- connecting with others affected by limb-girdle muscular dystrophy
- being an advocate for our campaigning and media work
- sharing your story to inspire others
- establishing a family fund
- Participating in fundraising events
We are currently supporting a research project into limb girdle muscular dystrophy by Dr Susan Brown, and are seeking to raise £86,130 to bring the project to completion. Please make a donation.
Support and information
We are here for you and your family. For more information about limb-girdle or for support, contact our freephone support line or send us an email (Monday to Friday 8.30am - 6pm): 0800 652 6352 (freephone) email@example.com.