Muscular dystrophy and related conditions cause muscles to waste and weaken. More than 70,000 people in the UK are affected

Congenital myotonic dystrophy

Congenital myotonic dystrophy is the early childhood form of myotonic dystrophy. It occurs only when the mother already has myotonic dystrophy. The condition is usually identified at birth or soon after; myotonic means "involving muscle stiffness"; and dystrophy, "muscle wasting and weakness". This condition is rare.

Support and Information

We are here for you and your family. For more information about Congential myotonic dystrophy or for support, contact our freephone support line or send us an email (Monday to Friday 8.30am - 6pm): 0800 652 6352 (freephone)

Support is also available from the Myotonic Dystrophy Support Group website, or by contacting them on 0115 987 0080.

< ┬áReturn to conditions