Muscular dystrophy and related conditions cause muscles to waste and weaken. More than 70,000 people in the UK are affected

Nemaline myopathy

Nemaline myopathies, or rod body myopathies, are a group of conditions which fall under the category of congenital myopathies. There are a number of different types of rod myopathies and they affect both males and females.  In the majority of cases the condition becomes apparent at birth or early childhood, although in very rare cases, it does not become apparent until adulthood. Rod myopathies are estimated to affect 1 in 50,000 individuals.

Support and information

The Muscular Dystrophy Campaign is here for you and your family. For more information about Nemaline myopathies or for support, contact our freephone support line or send us an email (Monday to Friday 8.30am - 6pm): 0800 652 6352 (freephone)

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