Muscular dystrophy and related conditions cause muscles to waste and weaken. More than 70,000 people in the UK are affected
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Fibrodysplasia ossificans progressiva (FOP)

Fibrodysplasia ossificans progressiva, is a disabling condition, which is caused by the formation of bony bars within the muscles of the body. This bone formation is usually first noticed in early childhood as a series of hard lumps in the neck or along the spine. These lumps, which may be tender, gradually shrink in size as the affected muscles are replaced by bone.

 

Support and Information

We are here for you and your family. For more information about FOP or for support, contact our freephone support line or send us an email (Monday to Friday 8.30am - 6pm): 0800 652 6352 (freephone)  info@muscular-dystrophy.org.

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