Muscular dystrophy and related conditions cause muscles to waste and weaken. More than 70,000 people in the UK are affected
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Congenital muscular dystrophy (CMD)

The congenital muscular dystrophies (CMDs) are a group of conditions which share an early presentation and a common muscle pathology. Congenital means 'from birth' and in the great majority of cases of congenital muscular dystrophy the initial symptoms are present at birth or in the first few months.

The Muscular Dystrophy Campaign leads the search for treatments and cures for congenital muscular dystrophies and other muscle-wasting conditions.  We provide expert advice and support for individuals and families living with CMD, and for health professionals.

 

In this section you'll find the latest information about CMD and helpful resources. 

The Muscular Dystrophy Campaign supports families by:

  • funding research projects and providing regular information about research progress
  • supporting the training and development of the next generation of scientists and funding clinical trials co-ordinators in the drive towards potential treatments
  • collaborating with the American patient organisation CureCMD to support the international congenital muscular dystrophy registry (CMDIR).
  • working with, and providing training and education for, NHS-funded care advisors
  • taking a leading role in driving NHS support for neuromuscular networks and spearheading campaigns to improve access and quality of specialist care
  • offering advice and information and enabling people to overcome difficulties through our advocacy service
  • providing grants towards specialist equipment to help people to live as independently as possible
  • helping people to connect with each other through our local Muscle Groups, online via TalkMD, at conferences and events; and through Trailblazers, our national network of young disabled people.

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There is a role for everyone in the fight against muscle-wasting conditions.  We are a small but strong community of people in the UK and we are determined to win this fight, together.

There are opportunities to get involved in a variety of ways, such as:

We are currently committed to supporting two research projects into congenital muscular dystrophy, for which we are seeking to raise £180,000. Please make a donation.

Support and information

We are here for you and your family. For more information about CMD please contact our freephone support line or send us an email (Monday to Friday 8.30am - 6pm): 0800 652 6352 (freephone)  info@muscular-dystrophy.org.

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