A vital support network

Margaret Jones one of the founders of the Teeside Muscular Dystrophy Campaign branch 25 years ago. She appreciates just how crucial its service is, and the importance of it being part of a nationwide group.

Margaret, who has spinal muscular atrophy, sees her Branch as a vital support network. "I met a family recently who have a four year-old son with Duchenne. One thing the mum said is that it's good to talk to someone who has the time to listen; someone who can be a friend."

One of the other reasons she helped set up the Branch was to provide a source of information and expertise on a range of topics from claiming benefits to the advantages of different aids and adaptations.

Margaret sees major benefits in being part of a nationwide group. "It gives us more influence, as well as providing an important source of information. The national conferences also give us an opportunity to meet people from other Branches."