General

Got a story to share that doesn't quite slot into the other categories? Share your experiences here.

If you want to have your story published on the website, please send it to:
Email - web@muscular-dystrophy.org
Post - Muscular Dystrophy Campaign, 61 Southwark Street, London, SE1 0HL.

Matthew Johnston - diving a dream

Matthew Johnston is 28 and has Duchenne, his dream is to go SCUBA diving. Matt tells of his fight to overcome the challenges of Duchenne muscular dystrophy to achieve his dream.

Read Matt's story

Alexandra Baily's Cards

Alexandra Baily talks about how she got into painting and how she creates cards.

Read Alexandra's story

You can do it!

Joan Anderton talks about her experience growing up with Limb Girdle muscular dystrophy.

Read Joan's story

Wendy Weyman's Life Story (by husband Keith)

Wendy Weyman, who died suddenly of pneumonia on 27 February 2007, aged 68, was diagnosed with Limb Girdle Muscular Dystrophy when she was 20 years old.

Read Wendy's life story

Bra Wars

As a woman with FSH Muscular Dystrophy, one of the most irritating aspects of having the condition and one of the most fundamental psychological hurdles along the path to getting on with enjoying one’s life probably also ranks among one of the most trivial in the grand scheme of things.

Read more about one woman's war with bras!

Living with muscular dystrophy in Nigeria

Esien Ita, 60 and Eyo Ita, 56 are two brothers, both of whom have been either bed-bound or in a wheelchair for the past thirty years.


Read their story as told by their brother, Ekpe

Waheed Mahmood

Waheed Mahmood is a young man with a unique story to tell.

Read Waheed's story

Gianni Mansi's short story

A short autobiographical piece by
Gianni, who has a rare myopathy.

Two Different Worlds

David Kane making music

David Kane has taken up the guitar
and is now making music.

Read David's story

Enjoying needlecraft

Maureen and Lilly delighting in their prize-winning needlecraft.

Read Maureen's story

Jack's wooden models

Jack McCracken displaying one of his hand crafted doll's houses.

Read Jack's story

Doris Noe enjoying bird watching

Doris, who enjoys bird watching in the countryside, has set up 'Bird watching holidays in Ireland' with her husband.

Read Doris's story

Anne using her toning equipment

Anne Smylie uses toning equipment
to control the progress of muscle contractions through her body and improve her breathing.

Read Anne's stroy

John produces paintings

John combines his interest in computers, art and photography to produce paintings that are sold regularly.

Read John's story

Suzanne and her hamster, Samy

Suzanne has a number of interests, including the girl's brigade and her pet hamster, Samy.

Read Suzanne's story

Patrick surfing the net

Patrick enjoys surfing the net
with friends.

Read Patrick's story

Tribute to the Bath Branch

After twelve years of active fundraising and support the Bath Branch has sadly closed. The Branch was formed in 1993 by Angela Lambert.

More about the Bath Branch

The launch of a new website

The plans to start Muscular Dystrophy Patients United started a little over a year ago. At the time, Dominick Evans, a twenty-four year old with spinal muscular atrophy was becoming increasingly aware of the need for an organisation for those with muscular dystrophy. This organisation would need to fill in the gaps where other American organisations left off.

Read Dominick's story

A tribute to Marion Salmon

A tribute to Marion Salmon from members of the Colchester Branch of
the Muscular dystrophy Campaign, by Janet Saunders and David Fremlin.

Read the tribute by Colchester Branch

Joe Stone and his son Larry

Joe Stone, aged 99, from Prestwich talks about his son Larry who had muscular dystrophy. Larry excelled in what he did and realised his dreams with love and encouragement from Joe.

Read Joe's story

Shawneena’s dream

Shawneena Laker is a 44 year-old woman who has
two children; 19 year old Molly and 13 year old Keir. Shawneena has limb girdle muscular dystrophy and has fought had for disability and benefits.

Read Shawneena’s story

A tribute to Tim

Emma Findlater's moving tribute to her late fiance, Tim. She tells of how the couple met, the barriers they faced
and their joy they shared.

Read Emma's tribute

Beth’s Wheelchair Challenge

Victoria Barr was diagnosed with limb
girdle muscular dystrophy at the age of 18. 
Victoria asked her friend, Beth, who is fully able-bodied, to take up the challenge of sitting in a wheelchair for eight hours to
see what it was like to ‘live the life of a wheelchair user’.

Read Victoria's story

Yasir Hayat Khan - An inspirational life

Yasir Hayat Khan from Nowshera, Pakistan, tells the way he has faced
his life having muscular dystrophy;
the feelings, the challenges and the
people who have been there for him along the way.

Read Yasir's Story

An ocean, immigration and muscular dystrophy

The story of US-based Andrew, who has spinal muscular atrophy, and UK-based Fiona, who has multicore-minicore myopathy, and the challenges they are trying to overcome to be together.

Andrew and Fiona's story

The Teesside Radio Car Club

Set up by the Teesside Radio Car Club, the 10th Mike Leonard Endurance Race took place on 22 January 2006. The race is named for the late Mike Leonard, who was a member of the Teesside Radio Car Club, and who had Emery-Dreifuss muscular dystrophy.

Read the club's story

Margaret's date with the Queen

Margaret Jones writes about her date with the Queen. She and her husband, Ian, were invited to Buckingham Palace on 3rd November 2005 to celebrate the Year of the Volunteer.

Read Margaret's story

Young Pavement Artists Competition - A judge's story

Adam Myles writes about his experience as a judge in the Young Pavement
Artist Competition.

Read Adam's story

Setting up a support group

Tim Davies explains how he set up the newly formed Becker United Support Group.

Read Tim's story