Congenital myotonic dystrophy home page
An introduction to congenital myotonic dystrophy
Congenital myotonic dystrophy is a rare condition that affects both males and females. It is the early childhood form of myotonic dystrophy (also known as Steinert's disease). Congenital means 'from birth' which is when the condition is usually identified; 'myotonic' means 'muscle stiffness' and 'dystrophy' means 'muscle wasting and weakness.Read the introduction in full
Key facts
- How does the disease present?
- How is it inherited?
- Is the condition progressive?
- How severe is it?
Read or download the factsheet
Support
Find out about our advice and information service, plus a wealth of information about adaptations, equipment and inclusive education in the Care and Support section.Care and support

