Duchenne - how we help
How we help families affected by Duchenne muscular dystrophy
The Muscular Dystrophy Campaign has been supporting families affected by Duchenne muscular dystrophy for fifty years. Since 1959 we have been fighting to find a cure for this devastating life-limiting condition, as well as providing free care and support. To date we have invested £50 million into research and £16.5m in supporting families across the UK.
Today we are the only charity fighting Duchenne muscular dystrophy on all fronts
Together with our families, supporters and scientists we are making real progress.
What have we achieved?
We continue to invest heavily in research into Duchenne muscular dystrophy - we currently fund 13 research projects into Duchenne and two clinical trials. Our scientists are cautiously optimistic that there will be a treatment for Duchenne in the next 10 years. Read more in our research section.
We provide vital support for children and adults through our care advisors and information service, and our grants towards vital equipment.
We play an active role in campaigning for drastic improvements to the support provided to everyone with muscle disease. The life expectancy for boys with Duchenne in the North East of England is 28; in the South West it is 18. This shocking discrepancy is due to the lack of access to specialist care.
Our campaigning work in the South West has led to a £1 million investment from the NHS which will make a real difference to families with Duchenne in the area. We continue to fight for improved specialist care in every region of the UK with our regional Muscle Group campaigns.
Looking ahead
There is still much to be done and by supporting and working together with families affected by Duchenne muscular dystrophy we will continue to lead the way.
For the latest information and news about Duchenne muscular dystrophy, email us at info@muscular-dystrophy.org
Please don't walk away
Help us continue our vital work to give help and hope to children like Bradley.
