Education Guidelines - downloads

The Muscular Dystrophy Campaign is pleased to make available the second edition of the Inclusive Education Guidelines. The first edition was very well received by the teaching community and families.

Recognising the continuing need for accessible information about inclusive education for children with a neuromuscular condition we have, with generous support from Norwich Union, published this second edition.

This new and improved edition reflects feedback and contributions from the thousands of teachers and parents who read and used the original publication. This second edition also features updated information in line with recently published and relevant academic papers.

All of the chapter from "Inclusive Education for Children with Muscular Dystrophy and other Neuromuscular Conditions. Guidance for primary and secondary schools - second edition" can be downloaded from this page.

You can also order a free copy by calling our Information Line on 0800 652 6352 (freephone) or emailing publications@muscular-dystrophy.org

For materials for teachers, parents and pupils click the links on the right.

Contents and introduction

Education Guidelines - Contents and introduction (1067 kb)

Chapter 1 - General issues

The first sections provide general information on the range of childhood muscular dystrophies and other neuromuscular conditions and a general introduction to planning for a child with these conditions in a school.
Education Guidelines - Chapter 1 (1783 kb)

Chapter 2 - Access to Schools and the Curriculum

This chapter provides guidance on how to fully include all pupils within a mainstream school. The chapter is set out in a table format as a checklist forteachers/educational advisors on the issues, strategies/ approaches and the resources available. It is broken down by key stages, primary and secondary school and includes a tabledetailing Information Communication Technology Solutions is provided; and a Pupil SupportTimetable proforma.

Chapter 3 - Working together - roles and Responsibilities

The roles and responsibilities of education staff and health and social care professionals are detailed. A guide to working with parents and the child is also included.
Education Guidelines - Chapter 3 (1298 kb)

Chapter 4 - Emotional and Psychological Issues

Ways of dealing with the emotional and psychological issues are discussed including dealing with diagnosis, providing general support for the family, other pupils and staff, addressing the childâneeds and dealing with loss and bereavement.
Education Guidelines - Chapter 4 (338 kb)

Chapter 5 - Health issues

Heath issues and treatment approaches are discussed. The need of schools to develop individual health care plans is detailed with a checklist of what is required.

An Individual Health Care Plan proforma is also provided.
Education Guidelines - Chapter 5 (346 kb)

Chapter 6 - Environmental considerations

This chapter provides information on access to school buildings and schools adaptations, the type of equipment they child may have or need and school transport issues.
Education Guidelines - Chapter 6 (866 kb)

Click for more information on Adaptations and Equipment.

Chapter 7 - Educational and school policies

This chapter details the educational legal and policy framework as well as suggesting policies for individual schools.
Education Guidelines - Chapter 7 (719 kb)

Chapter 8 - Moving and handling children

This chapter provides details how to assess moving and handling risks and includes good practice guidelines.

Moving and Handling proformas are also provided.
Education Guidelines - Chapter 8 (1552 kb)

Chapter 9 - Extended schools provision

Partnership working between mainstream and special schools and the role of hospital schoolingand respite and hospice care is discussed.
Education Guidelines - Chapter 9 (609 kb)