Locating your Regional Care Advisor
To find the Regional Care Advisor for your area, please see the list below and look for the city that is nearest to where you live.
If you would like to email any of the Regional Care Advisors, please use this address:
info@muscular-dystrophy.org
Belfast
Laura McKeown is Northern Ireland's Regional Care Advisor. She covers Northern Ireland and Isle of Man. Her contact details are:Po Box 192
Newtownabbey, Co.Antrim
N.Ireland BT36 9BF
Tel: 028 9083 9153
Bristol
Jan Smith is a Regional Care Advisor based in Bristol. Dealing with children & young people up to the age of 25. Her contact details are:c/o The Children's Centre
Frenchay Hospital
Frenchay
Bristol
BS16 1LE
Tel: 0117 975 3917
Jan Smith works from the Bristol Muscle Clinics and covers the South West.
Cambridge
The Regional Care Advisor for Cambridgeshire, Suffolk and Norfolk has retired and unfortunately, Addenbrooke's Hospital Trust has decided against continuing to fund the post. This position was created by the Muscular Dystrophy Campaign 18 years ago and 18 months ago Addenbrooke's agreed to take on and fund the post.The Care Advisor covered
- Bedfordshire
- Cambridgeshire
- Norfolk
- North and East Herts
- North and East Essex
- Suffolk
And in the following Unitary Authorities:
- Luton
- Peterborough
Edinburgh
Yvonne Robb is a Regional Care Advisor based in Edinburgh. Her contact details are:Clinical Genetic Services
Western General Hospital
Edinburgh
EH4 2XU
Tel: 0131 651 1018
She works in the following counties:
- Aberdeenshire
- Angus and Mearns
- Clackmannanshire
- East Lothian
- Falkirk
- Fife
- Highland (East)
- Inverness Midlothian
- Moray
- Orkney
- Perth and Kinross
- Scottish Borders
- Shetland
- Stirling
- West Lothian
And in the following Unitary Authorities:
- City of Aberdeen
- City of Dundee
- City of Edinburgh
- City of Inverness
Glasgow
Christine Murphy is a Regional Care Advisor based in Glasgow. Her contact details are:Ferguson-Smith Centre for Clinical Genetics
Yorkhill Hospital
Yorkhill
Glasgow G3 8SJ
Tel: 0141 201 0656
She works in the following counties:
- Argyll and Bute
- Dumfries and Galloway
- East Ayrshire
- East Dumbartonshire
- East Renfrewshire
- Highland (West)
- Inverclyde
- North Ayrshire
- North Lanarkshire
- Renfrewshire
- South Ayrshire
- South Lanarkshire
- West Dunbartonshire
- Western Isles
And in the following Unitary Authority:
- City of Glasgow
Leeds
Sue Manning is a Regional Care Advisor based in Leeds. Her contact details are:c/o The Paediatric School
A Floor, Clarendon Wing
Leeds General Infirmary
Leeds
LS2 9NS
Tel: 0113 392 3113
She works in the following counties:
- East Yorkshire
- West Yorkshire
- North Yorkshire
And in the following Unitary Authorities:
- Bradford
- Calderdale
- Kingston upon Hull
- Kirklees
- Leeds
- Wakefield
- York
Liverpool
Sarah Savage is a Regional Care Advisor based in Liverpool. Her contact details are:Neurology Dept
Neurosciences Building
Alder Hey Chrildren's Hospital
Eaton Road
Liverpool
L12 2AP
Tel: 0151 252 5747
Sarah Savage works out of the Liverpool Muscle Clinics, covering the North West.
London
Martin Chainani is a Regional Care Advisor based at Great Ormond Street Hospital. His contact details are:Psychosocial & Family Services
Level 3
The Italian Building
Queens Square
London
WC1N 3JH
Tel: 020 7405 9200 Ext 0529
Newcastle upon Tyne
Edwina Perkins is based in Newcastle upon Tyne. Her contact details are:The Newcastle Muscle Centre
The Institute of Human Genetics
The International Centre for Life
Central Parkway
Newcastle upon Tyne
NE1 3BZ
Tel: 0191 241 8761
She works in the following counties:
- Cumbria
- Durham
- Northumberland
And in the following Unitary Authorities:
- Darlington
- Gateshead
- Hartlepool
- Middlesbrough
- Newcastle upon Tyne
- North Tyneside
- Redcar and Cleveland
- South Tyneside
- Stockton on Tees
- Sunderland
Nottingham (and the Midlands)
Julie Cassell, who covers East Midlands and South Yorkshire, is based in Nottingham. Her contact details are:Nottingham University Hospitals
NHS Trust
Queen's Medical Centre Campus
Family Health Division
Children's Services
Derby Road
Nottingham
NG7 2UH
Tel: 0115 924 9924 Ext: 63839
Julie Cassell works at Muscle Clinics across East Midlands and South Yorkshire.
Oxford
Jane Stein is a Regional Care Advisor based in Oxford. Her contact details are:Department of Clinical Neurology
Level 3
West Wing
John Radcliffe Hospital
Headley Way
Oxford
OX3 9DU
Tel: 01865 234221
Jane Stein works with patients (both adults and children) at the Oxford Muscle Centre.

