Campaigns
In isolation our voices are too quiet to be heard; together we have a louder voice and we can make real changes.
Sharon Kitcher, whose son James has Duchenne muscular dystrophy
We highlight the problems faced by individuals and families living with muscle disease - gaps in care; the 'postcode lottery'; financial hardship; early deaths.
We campaign with families and clinicians and we are dedicated to putting pressure on politicians and decision makers in Westminster and the devolved countries, as well as the NHS and local authorities, to:
- end the scandal of early deaths due to a lack of care
- ensure all adults and children living with muscle disease can access essential specialist services
- end the current ‘postcode lottery’ in the provision of health and social services
- increase the number of muscular dystrophy Care Advisors – currently only one out of four patients have access to their support and advice
By securing extensive local and national media coverage through our campaigning work, we make sure the voice of people with muscle disease is heard loud and clear.
Together we will campaign to improve the quality of life and boost independence for everyone living with muscle disease.We campaign all year round in every part of the UK and are really making a difference to the lives of many families living with muscle disease. We are unable do this without your support, so if there is an issue you want heard, please get in touch with the campaigns team.
