Campaigns
In isolation our voices are too quiet to be heard; together we have a louder voice and we can make real changes.
Sharon Kitcher, whose son James has Duchenne muscular dystrophy
The Campaigns team highlight the problems faced by individuals and families living with muscle disease - gaps in care; the 'postcode lottery'; financial hardship; early deaths.
We campaign with families and clinicians and we are dedicated to putting pressure on politicians and decision makers in Westminster and the devolved countries, as well as the NHS and local authorities, to:
- end the scandal of early deaths due to a lack of care;
- ensure all adults and children living with muscle disease can access essential specialist services;
- end the current ‘postcode lottery’ in the provision of health and social services;
- increase the number of muscular dystrophy Care Advisors – currently only one out of four patients have access to their support and advice.
By securing extensive local and national media coverage through our campaigning work, we make sure the voice of people with muscle disease is heard loud and clear.
Together we will campaign to improve the quality of life and boost independence for everyone living with muscle disease.We campaign all year round in every part of the UK and are really making a difference to the lives of many families living with muscle disease. We are unable do this without your support, so if there is an issue you want heard, please get in touch with the campaigns team.
020 7803 4847
campaigns@muscular-dystrophy.org
Twitter: CampaignsMD
Meet the Campaigns team...
Nic Bungay - Director of Care, Support and Campaigns
Nic oversees the work of the department and ensures that the Care, Support and Campaigns Team keep the needs of people living with muscle disease at the heart of our day to day work.
Bobby Ancil – Project Manager, Trailblazers – Young Campaigners' Network
Bobby oversees Trailblazers national and regional campaigns and ensures that young people with muscle disease are at the heart of the charity’s work.
Lisa James – Senior Policy and Campaigns Officer
Lisa is working with our Muscle Groups to continue campaigning for improved specialist neuromuscular services in each region. She leads on our policy and campaigning work with Government to make sure that the needs of people with muscle disease are recognised and responded to nationally.
Jonathan Kingsley – Parliamentary and Campaigns Officer
Jonathan is coordinating Parliamentary activity and working on inquiries being conducted by cross party groups on muscular dystrophy in the Houses of Parliament, Scottish Parliament and Welsh Assembly. He is also working with Muscle Groups in Northern Ireland, Scotland and Wales.
Tanvi Vyas – Project Assistant, Trailblazers - Young Campaigners' Network
Tanvi is working on building new regional Trailblazers groups across the UK and developing national and regional campaigns.
