Campaign news
- 9 March 2010
Health bosses pressed in Parliament to improve services urgently NHS Specialised Commissioning Group bosses were put under pressure today in Parliament by the All Party Parliamentary Group for Muscular Dystrophy to act urgently to improve neuromuscular services. - 3 March 2010
Lack of specialist help after diagnosis in Wales “is just cruel” This is the damning verdict of the Welsh Cross Party Group on Muscular Dystrophy Chair, Dr Dai Lloyd AM. The Group is holding a special session today focusing on essential care, support and advice as part of the Group’s ongoing review. - 18 February 2010
2010 national patient survey – share your views Take part in the biggest ever UK patient survey about living with muscle disease – we need your views to help us to campaign for improvements to vital neuromuscular services in your area. - 18 February 2010
William Hague MP lends muscle to Yorkshire and Humber Muscle Group William Hague, MP for Richmond (Yorkshire), has accepted an invitation by the Yorkshire and Humber Muscle Group to be one of the patrons of their organisation. - 5 February 2010
West Midlands health bosses field calls from campaigning mum on muscle disease services A campaigning mum in the West Midlands, Jane Field, is phoning every Primary Care Trust Chief Executive in the region to demand better healthcare for her disabled son and thousands of patients like him. - 3 February 2010
Muscle disease patients in West Midlands still waiting for the NHS Families living with muscle disease in the West Midlands are still waiting for PCT Chief Executives to approve a vital plan to urgently fix failings in health services for rare neuromuscular conditions. - 1 February 2010
Employment rights boosted for people with muscle disease Planned changes in the law to stop employers discriminating against people with disabilities will boost the rights of people with muscle disease – but our young campaigners say that more work is still needed. - 27 January 2010
Urgent service improvements called for by Welsh families Families living with muscle disease in Wales are having their say today to relay their shocking experiences and call for urgent service improvements at the latest Cross Party Group Review session in the Welsh Assembly. - 19 January 2010
NHS chiefs challenged in Parliament to improve neuromuscular services NHS chiefs were put under pressure today to take urgent action to improve neuromuscular services by MPs and Peers as the All Party Parliamentary Group for Muscular Dystrophy followed up recommendations of the group’s Walton Report. - 7 January 2010
Scottish Cross Party Group a “catalyst for change” This is the hope for the new Cross Party Group in the Scottish Parliament on Muscular Dystrophy expressed by Chair, Jackie Baillie MSP, as MSPs launched the new group yesterday supported by families and health professionals.
