Campaign news
- 9 February 2012
Three full time Care Advisor posts secured in Scotland Patients and families from across Scotland met NHS decision-makers in the Scottish Parliament yesterday as details of three full time Care Advisor posts were outlined. - 7 February 2012
Patients and families take centre stage at Northern Ireland Assembly Inquiry Today, patients and their families, backed by the Muscular Dystrophy Campaign, will give evidence as part of a major inquiry into specialist care at Stormont. - 3 February 2012
Statement on the Health and Social Care Bill Read our latest position statement on the Health and Social Care Bill. - 1 February 2012
Campaigners highlight need for Welsh neuromuscular network with Health Minister Campaigners met with Welsh Government Health Minister, Lesley Griffiths AM, yesterday to discuss the need to develop a neuromuscular network in Wales. - 31 January 2012
Fighting for a fairer Welfare Reform Bill Today the Welfare Reform Bill is being debated in the House of Lords, before the changes suggested by Peers are discussed by MPs again in the House of Commons tomorrow. - 30 January 2012
Gold standard of care outlined by the NHS The NHS is moving closer to developing a 'gold standard' service for patients with a neuromuscular condition through their draft service specification for specialised neuromuscular services - 28 January 2012
Local campaigners lead fight for more specialists Thanks to the dedication of people like Tony Lewis, whose son David had muscle disease, there is now an NHS led Neuromuscular Steering Group, spearheading plans to boost levels of specialist care across the region. - 26 January 2012
Newborn screening under the spotlight in Parliament Newborn screening for Duchenne muscular dystrophy was the focus of an All Party Parliamentary Group for Muscular Dystrophy meeting yesterday. - 19 January 2012
Fight for increased Care Advisor support in Scotland Essential Care Advisor posts were at the top of the agenda yesterday as the Muscular Dystrophy Campaign met with Scottish Government Minister for Public Health, Michael Matheson MSP. - 17 January 2012
Lights, Camera, Access film launched online today Trailblazers have launched their award-winning campaign film Lights, Camera, Access online.
