Thursday 14 June 2012
Joining forces with politicians across the UK to campaign for better care and support
The Muscular Dystrophy Campaign is organising plenty of parliamentary action coming up over the next month across the UK and we need your support at these events to convey the urgent need for better access to neuromuscular services.
The All Party Parliamentary Group for Muscular Dystrophy will be hearing from clincians and NHS commissioners about their investigations into unplanned emergency admissions to hospital for people with muscular dystrophy and related neuromuscular conditions at a session in the Houses of Parliament on Tuesday 26th June at 3.30pm.
In Scotland, there is a chance for you to join forces with MSPs at a Scottish Parliament screening of Jon Hastie's A Life Worth Living film, which is being arranged by the Muscular Dystrophy Campaign's Scotland Muscle Group Chair, Mark Chapman, and hosted by Jackie Baillie MSP. The event takes place on Tuesday 26th June from 6pm to 8pm in Committee Room 1 in the Scottish Parliament.
Following a six month inquiry into access to specialist neuromuscular care in Northern Ireland, the All Party Group on Muscular Dystrophy in the Northern Ireland Assembly, with the support of the Muscular Dystrophy Campaign, will be launching its inquiry report on Tuesday 3rd July from 12pm to 3pm in the Long Gallery at the Assembly.
The Muscular Dystrophy Campaign is arranging a screening of Jon Hastie's A Life Worth Living film in the Houses of Parliament on Tuesday 10th July from 6pm to 9pm in the Attlee Suite in Portcullis House. As well as a screening of the film, there will be a panel discussion on the issues covered in the film and we will be joined by Minister for Disabled People, Maria Miller MP.
A meeting of the Cross Party Group on Muscular Dystrophy in the Welsh Assembly has been arranged for Tuesday 17th July from 5.30pm to 7.30pm in Conference Room 24 at the Assembly, with independent living and care advisor support amongst the discussion topics.
Your support is invaluable as we campaign for vitally important improvements to services for people with muscular dystrophy and related neuromuscular conditions. We hope to see you at one or more of these events and meetings over the next few weeks.
The Muscular Dystrophy Campaign provides all the organisational support for the cross party groups on muscular dystrophy in the Houses of Parliament, Scottish Parliament, Welsh Assembly and the Northern Ireland Assembly.
More details about these events will be published in due course on our website - to attend any of these events and for more information, please get in touch on 020 7803 4839 or by email to firstname.lastname@example.org