Campaign news
East of England:
- 5 July 2011
All Party Group vows to hold NHS bosses to account The All Party Parliamentary Group for Muscular Dystrophy vowed to hold NHS bosses to account as they met with regional NHS Specialised Commissioning Group representatives this morning in Parliament. - 27 May 2011
Campaigns on tour - five cities; twelve days! We've been off around the country campaigning for better services with our inspirational Muscle Groups. - 17 May 2011
Have your say in our hospital survey To fight for further investment in specialist neuromuscular services we really need your help, by filling in our new survey, so that we can gather evidence regarding the care that you or someone close to you receives in hospital. - 11 May 2011
NHS wastes £31 million a year The Muscular Dystrophy Campaign’s Invest to Save report, launched in Parliament today, reveals that the NHS is wasting £31 million each year on unplanned emergency admissions to hospital for muscle disease patients. - 27 January 2011
Three new Care Advisors announced for East of England Ruth Wailes from the NHS East of England Specialised Commissioning Group has announced that there will be three new Muscular Dystrophy Care Advisors for the region. - 25 August 2010
Survey reveals shocking lack of specialist care for people living with muscle disease The Muscular Dystrophy Campaign has published a shocking report today, following a national patients’ survey, which reveals an alarming lack of specialist multi-disciplinary care for people living with muscle disease. - 13 July 2010
NHS reforms may have devastating impact on rare conditions The Muscular Dystrophy Campaign has expressed serious concerns about the Health Secretary Andrew Lansley's new-model NHS described in yesterday’s White Paper, raising fears that it will put people with rare conditions at risk. - 6 July 2010
APPG shocked that London is only region not reviewing neuromuscular services The All Party Parliamentary Group (APPG) for Muscular Dystrophy, meeting today in Parliament, expressed its shock that London is now the only English region not conducting a review of neuromuscular services. - 29 June 2010
Health Minister forced to accept failings in Wheelchair Services Health Minister Paul Burstow MP was forced to accept widespread failings and inefficiencies in the commissioning and delivery of wheelchair services in a House of Commons debate last night secured by Dave Anderson MP. - 25 June 2010
Victory in Local Housing Allowance Campaign Following many months of campaigning by the Muscular Dystrophy Campaign and other disability groups, the Local Housing Allowance, which has replaced Housing Benefit for new claimants, will now pay for an extra room for a live-in carer.
