Campaign news
London:
- 10 November 2011
Working with Great Ormond Street Hospital to improve neuromuscular services Last week, the Muscular Dystrophy Campaign met with Dr Jane Collins, Chief Executive of Great Ormond Street Hospital to discuss how we can support them as they develop their neuromuscular services - 9 November 2011
Driving forward service improvements in London Today the Muscular Dystrophy Campaign discussed services in London at a meeting with Lord Walton and Dr Andy Mitchell, Medical Director at NHS London - 17 May 2011
Have your say in our hospital survey To fight for further investment in specialist neuromuscular services we really need your help, by filling in our new survey, so that we can gather evidence regarding the care that you or someone close to you receives in hospital. - 11 May 2011
NHS wastes £31 million a year The Muscular Dystrophy Campaign’s Invest to Save report, launched in Parliament today, reveals that the NHS is wasting £31 million each year on unplanned emergency admissions to hospital for muscle disease patients. - 19 November 2010
Trailblazers evidence featured in new report on London’s transport network A new report by the London Assembly Transport Committee, based on evidence provided by Trailblazers campaigners, was launched today. - 19 October 2010
Specialised Commissioning in All Party Group spotlight MPs and Peers in the All Party Parliamentary Group for Muscular Dystrophy put pressure on national and regional health bosses in Parliament today to implement neuromuscular service improvements. - 25 August 2010
Survey reveals shocking lack of specialist care for people living with muscle disease The Muscular Dystrophy Campaign has published a shocking report today, following a national patients’ survey, which reveals an alarming lack of specialist multi-disciplinary care for people living with muscle disease. - 13 July 2010
NHS reforms may have devastating impact on rare conditions The Muscular Dystrophy Campaign has expressed serious concerns about the Health Secretary Andrew Lansley's new-model NHS described in yesterday’s White Paper, raising fears that it will put people with rare conditions at risk. - 6 July 2010
APPG shocked that London is only region not reviewing neuromuscular services The All Party Parliamentary Group (APPG) for Muscular Dystrophy, meeting today in Parliament, expressed its shock that London is now the only English region not conducting a review of neuromuscular services. - 29 June 2010
Health Minister forced to accept failings in Wheelchair Services Health Minister Paul Burstow MP was forced to accept widespread failings and inefficiencies in the commissioning and delivery of wheelchair services in a House of Commons debate last night secured by Dave Anderson MP.
