Join the fight
Together we can improve the quality of life and boost independence for people living with muscle disease. For example, we have found that:
- three out of four carers lack access to respite care
- over 50% of patients have no access to a specialist neuromuscular consultant
- survival rates for boys with Duchenne muscular dystrophy is 18 years in the South West, compared to 28 years in the North East.
- vital services, such as physiotherapy, are often withdrawn by the age of 19
- over 50% of patients do not see a physiotherapist
- 75% of families experience financial hardship
As part of the Building on the Foundations campaign, we are setting up regional Campaign Groups - ‘Muscle Groups’ - involving families, supporters and healthcare professionals.
The South West Muscle Group, established in 2008, has already been instrumental in securing service improvements for local people living with muscle disease.
Would you like to join your local Muscle Group?
Please share your experiences and tell us about the issues that affect you. We can help make a difference.
Contact the Campaigns Team to find out about your regional Muscle Group:
020 7803 4847
campaigns@muscular-dystrophy.org
Trailblazers
Are you between the ages of 16 and 30 and want to fight for the rights of younger people with muscle disease? Visit the great new Trailblazers website and find out more.
