All Party Parliamentary Group Inquiry
A cross party group of MPs and Peers, chaired by Dave Anderson MP, has conducted an Inquiry into access to NHS specialist care for people living with muscular dystrophy and related neuromuscular conditions.
Evidence from the Muscular Dystrophy Campaign of gaps in care, early deaths and poor support led to a Parliamentary Inquiry by the All Party Parliamentary Group for Muscular Dystrophy (APPG), which has examined the need for specialist neuromuscular services in the UK.
The Group has now published its findings after eight months of receiving oral and written evidence from key clinicians, researchers, patients and NHS commissioners from across the UK.
Read Access to Specialist Neuromuscular Care: The Walton Report
The APPG is issuing a follow-up call for evidence to supplement the Walton Report. Email campaigns@muscular-dystrophy.org to submit additional evidence to the APPG.
The Group recognises the need for urgent improvements in access to specialist neuromuscular care across the UK and is continuing to monitor and review the implementation of the recommendations of the Walton Report.
The APPG investigation followed a number of hard hitting reports published by the Muscular Dystrophy Campaign, which reveal that life expectancy and quality of life is being seriously affected by a ‘postcode lottery’ in service provision.
The APPG is chaired by Dave Anderson MP and also includes Lord John Walton, ex-president of the British Medical Association and the General Medical Council, as well as Baroness Celia Thomas, front bench Opposition Spokesperson, who has limb girdle muscular dystrophy, and Vice Chairs John Leech MP, Paul Maynard MP and Dan Rogerson MP.
If you would like a copy of the Walton Report, further information about the Inquiry and the Group's subsequent work, please get in touch:
020 7803 4839
campaigns@muscular-dystrophy.org
