Working for you
We offer free advocacy support and want to hear from anyone who is experiencing difficulties with their local services
We're here to fight for your rights - contact the Campaigns Team for advocacy support. Phone us on 020 7803 4847 or email campaigns@muscular-dystrophy.org
We want to put an end to the kind of shocking muscular dystrophy statistics which were revealed in our recent patient survey:
- half of patients have no access to a specialist neuromuscular consultant
- 50% of patients do not have an NHS funded wheelchair
- more than 50% of patients do not have access to a physiotherapist
The Campaigns team are here to help anyone affected by muscle disease who is experiencing difficulties with social care, education, access to specialist health care services and employment rights issues.
Read how the Campaigns team fought to help A'level student Michaela after she encountered discrimination when applying to go to university. Read Michaela’s story.
Michaela is now a member of Trailblazers – our young campaigner’s network. Over 110 young people with muscle disease from across the UK have joined forces with Michaela and are fighting for their rights. Visit the site and learn more about the group’s exciting campaigns and how you can join.
Meet the Campaigns team...
Robert Meadowcroft – Director of Policy and Operations
Robert oversees the work of the department and ensures that the Policy and Campaigns Team keep the needs of people living with muscle disease at the heart of our day to day work.
Nic Bungay – Head of Policy and Campaigns
Nic is heavily involved in the charity’s Building on Foundations campaign, as well as the charity’s work in the North and East of England and the devolved countries.
Bobby Ancil – Project Manager, Trailblazers – Young Campaigners' Network
Bobby oversees Trailblazers national and local campaigns and ensures that young people with muscle disease are at the heart of the charity’s work.
Alexandra Crampton - Policy and Campaigns Officer
Alexandra is busy building local pressure groups and campaigning coalitions in the West, South and South East of England; with the aim of improving access to local services for those families struggling to get the care they need.
Jonathan Kingsley – Policy and Campaigns Assistant
Jonathan is currently working with the All Party Parliamentary Group for Muscular Dystrophy in the House of Commons on their Inquiry into access to specialist care.
Natasha Kelly - Policy and Campaigns Assistant
Natasha is getting involved in campaigning activity in Scotland as well as our Muscle Groups across England.
