We’ve changed our name to Muscular Dystrophy UK. We rely almost entirely on voluntary donations to fund our vital work.

Family Funds

Setting up a family fund is a great way to fundraise for the Muscular Dystrophy Campaign, as a family or group. We are incredibly proud of our Family Funds; they are made up of exciting supporters with real commitment, ambition and passion for fundraising and the Muscular Dystrophy Campaign.

Is a Family Fund right for you?

  •  Have you considered setting up your own charity to have control over what your money funds? A Family Fund is a fantastic alternative. We will look after the administration, Charity Commission paperwork, accounts and associated costs on your behalf so you can concentrate on fundraising. Also, if you're interested in a particular condition or a specific area of our work, please let us know.  We are keen to match our work to donor interest and we can restrict your funds to planned projects and broader areas of activity such as our Duchenne Breakthrough Research Fund or other condition-specific research. Your funds will be directed into the areas that most interest you – and decided in conjunction with you so you have the final say.
  • Do you have good networks such as friends, family, work colleagues and the local community who you know will get behind your Family Fund to support you with events – you just need that catalyst to make that happen?
  • Would you be willing to be the local ‘face’ of your Family Fund and the charity in your community? Our Family Funds often appear in both local and national press and on our social media. Whilst not essential, some of our more successful Family Funds are really vocal for both themselves and as local champions of the charity.
  • And finally – do you want to fundraise? Family Funds are among the most driven and passionate fundraisers, because they have a real desire to progress research quickly. We want to make that happen so the benefit is mutual. The more money raised, the more impact we can have and Family Funds are at the forefront of that. With existing Family Funds raising anywhere between £4,000 and £20,000 plus each year there is a home here for most levels of fundraising – we just want to see that ambition!

Family Funds may not be the right path for every supporter and it is important that you consider this, in conjunction with your Volunteer Fundraising Manager. If after discussions you decide this isn't for you, don’t worry, there will always be a home for every supporter at the Muscular Dystrophy Campaign and even if this isn't the path you take we are here to help you find the right path for you.

Why set up a Family Fund?

  • We will help promote your story on our website – you will have your very own page on the website to share your story and raise your profile – and through our social media activity.
  • You can name your fund however you choose; name it after your friend or family member or your local area – you will also get a dual branded logo giving you fundraising credentials.
  • You will have a dedicated Volunteer Fundraising Manager who will support your fundraising activities and update you on the impact this is making on our work.
  • We will provide you with fundraising materials including sponsor forms, posters, balloons and collecting tins, as well as an online portal where you can create your own bespoke materials.
  • Special access to exciting events and new product trials such as our regular giving pilots.
  • You will receive quarterly updates about our work, local fundraising events and have the opportunity to advertise your own events.

How your Fund will be spent

By raising funds for the Muscular Dystrophy Campaign, you are supporting our work to find treatments and ultimately cures for muscular dystrophy and related conditions and to make a real difference for people affected by them in the UK. There can be a real bespoke element to how your funds can be spent, and this is one of the exciting parts about becoming a Family Fund – see some of the live examples by searching through our existing Family Funds.

For more information about setting up or supporting a Family Fund, please contact your local Volunteer Fundraising Manager.

Use the filters on the right hand side to search Family Funds by area or by condition or you can view all Family Funds.

  •  Abbi's campaign - one in a million Gary and Sarah Bennett, whose daughter, Abbi, has Ullrich congenital muscular dystrophy, started a fundraising committee which they called Abbi's campaign - one in a million.
  •  Action4Archie Action4Archie is a Family Fund set up by Louise and Gary for their eight-year-old son Archie, who has Duchenne muscular dystrophy.
  •  Adam's Fund Adam’s Fund is a family fund set up by Toni and Phil for their eight-year-old son Adam, who has Duchenne muscular dystrophy.
  •  Alfie's Fund Rachel and Sam Yates set up Alfie’s Fund for their son Alfie, who was diagnosed with Duchenne muscular dystrophy in 2009 when he was three years old. They hope to raise as much money as possible to fund research into potential treatments.
  •  Auzair's Fast Track Research Fund The Arshad family has set up Auzair's Fast Track Research Fund, for 16-year-old Auzair who has Duchenne muscular dystrophy.
  •  B. Baggins Foundation The B. Baggins Foundation is a family fund set up by the Booths for their son Ben, who has limb-girdle muscular dystrophy.
  •  Callum's Crusade Callum’s Crusade is a family fund set up by Damian and Beth for their son Callum, who has, at present, an undiagnosed form of muscular dystrophy.
  •  Carrieon-fighting Carrieon-fighting is a family fund set up by Mark and Cheryl North for their daughter Carrieanne, who has congenital myopathy.
  •  Carson's Angels Carson’s Angels is a family fund set up by Sabrina and David for their son Carson, who has Duchenne muscular dystrophy.
  •  Christopher McCollum Fund The Christopher McCollum Fund is a family fund set up by Gerry and Geraldine McCollum, in memory of their son Christopher who had Duchenne muscular dystrophy.