We rely almost entirely on voluntary donations from companies, trusts, foundations, groups and individuals to fund our work
1350550252

What your money funds

We aim to find treatments and ultimately cures for muscular dystrophy and related conditions and improve the lives of all those people affected by them in the UK. We act to make a real difference for people affected by muscular dystrophy and related conditions.

  • We are committed to leading the research for effective prevention, treatments and cure
  • We are dedicated to improving the lives of everyone affected by muscular dystrophy and related conditions
  • We are leading the fight against muscular dystrophy and related neuromuscular conditions
  • We believe specialist services should be available locally for everyone affected by muscular dystrophy and related neuromuscular conditions
  • We are committed to providing up to date communications on research to patients, families and the science and medical communities.

 

£35

funds an hour of research that could lead us to an effective treatment or cure to improve and lengthen people's lives.

£50

gives parents one hour with a specialist physiotherapist who can show them the valuable muscle-stretching techniques that could keep their child walking for longer.

£120

funds our freephone advocacy and advice telephone service for one day so staff can advise and signpost supporters who are experiencing difficulties with social care, education, access to specialist health care services and employment rights issues. 

£148

funds our freephone Information Line for one day so staff can provide vital support to families and healthcare professionals on a wide range of conditions and issues. 

£300

funds patient information on muscular dystrophy and related neuromuscular conditions to be displayed at clinics for patients 

£400

funds a training module for allied health professionals including care advisors, physiotherapists and occupational therapists

£500

allows our nationwide network of young people with muscular dystrophy and related neuromuscular conditions - the Trailblazers - to get together in their local areas, to discuss how best to get jobs, socialise and live independently

£520

funds our MD Links service for a month so that people with a rare condition can speak to others in their local area with the same condition

£900

allows the charity to make a grant towards the cost of a child's powered wheelchair

£2,000

covers the running costs of a muscle centre for a week, providing diagnosis and multi-disciplinary care

£2,000

funds a local Muscle Group for one year; providing peer-to-peer support and advice to families living with muscular dystrophy and related neuromuscular conditions 

£3,700

funds our comprehensive information service for a week that includes our freephone Information Line, updating and supplying factsheets, advocacy support, peer-to-peer support programmes and workshops

£5,000

allows us to ensure the voice of people living with muscular dystrophy and related neuromuscular conditions is heard loud and clear in each of the four Parliaments of the UK; through parliamentary events, lobbies and cross party groups 

£10,000

funds training days for allied health professionals including care advisors, physiotherapists and occupational therapists 

£10,000

funds two months of pioneering research into the causes of and treatments for muscle disease

£30,000

funds a PhD studentship for one year.

£100,000

supports a research student through their PhD, encouraging the brightest young scientists to stay in the field of neuromuscular research.