Booklets
Our booklets provide general support to individuals and families living with muscular dystrophy.
They are a particularly useful resource for parents of newly diagnosed children. The majority of our booklets for families are written by our Regional Care Advisers, who support parents and children with muscle disease on a daily basis.
You can download our booklets by following the links below, or for further information about our booklets please contact us:
0800 652 6352 (freephone)
info@muscular-dystrophy.org
- An introductory guide for families with a child newly diagnosed with a neuromuscular condition Support and information for parents, addressing common concerns at this difficult time
- An introductory guide for families with a child newly diagnosed with Duchenne muscular dystrophy Support and information for parents of a child recently diagnosed with Duchenne muscular dystrophy
- DMD “On the Ball” Facts and tips for boys aged between 11 and 14 who have Duchenne muscular dystrophy.
- Duchenne muscular dystrophy: A guide for families with a child aged 5-12 years Information for parents about what to expect and plan for with a primary-school aged child with Duchenne muscular dystrophy
- Duchenne muscular dystrophy: The teenage years Information for teenagers who have Duchenne and their families, addressing the common questions that arise during adolescence
- Everybody’s Different, Nobody’s Perfect A useful tool for explaining differences to children, emphasising that everyone is unique in their own way
- Hey, I’m Here Too! For siblings of children with Duchenne muscular dystrophy, useful for parents when talking about differences among their children
- Neuromuscular conditions: A guide for families with a child aged 5-12 years Information for parents of a child with muscle disease of primary-school age
- Physiotherapy management for Duchenne muscular dystrophy Information for parents of boys with Duchenne muscular dystrophy about practising physiotherapy at home
- Same but different A booklet for school pupils who have a child with muscle disease in their class
Page 1 of 1
