The Joseph Patrick Trust Grants Panel
All applications are reviewed by the Joseph Patrick Trust Grants panel. The panel oversees the Joseph Patrick Trust's budget and spending. It currently meets four times a year.
The panel is made up of service users, parents and professionals from around the UK who volunteer their services.
If you can spare a few days a year and would like to serve on the panel, please contact us
Our office hours are Monday-Thursday 9am-1pm.
020 7803 4811 or 020 7803 4814
David Jackson – current chairman of the grants panel
David says that he is both proud and privileged to have been associated with the Muscular Dystrophy Campaign for over 40 years and in particular the Joseph Patrick Trust, serving in recent years as the Chairman of the Trust’s Grant Making Panel.
He is heartened each time that the panel hears from a recipient of a grant and is delighted that the Trust has made such a difference to their lives. He is also pleased that the effect of the trust extends to a much wider field of parents, relatives, friends and carers, who also benefit as a result of the provision of various items of equipment such as electric beds, riser chairs and car adaptations.
But David is far from complacent: "The number of grants to people with neuromuscular conditions continues to increase year by year thus reflecting the continual need for our work."
Stella was appointed to the Joseph Patrick Trust Grants Panel in 2004. She has supported the Muscular Dystrophy Campaign for over 30 years.
Stella was diagnosed with facioscapulohumeral muscular dystrophy (FSH) in 1955 and has been a wheelchair user since 1977. She was a founder member of Camden Dial a Ride in 1983 and later become Chair. She also went on to become Vice-Chair of Central London Dial a Ride. Stella has wide experience in disability transport issues, having served on the Disabled Persons Transport Advisory Committee, and the London Regional Passengers Committee, now “London Travel Watch”. She is the Muscular Dystrophy Campaign representative on The London Councils Mobility Advisory Panel.
Kate Fox has been a panel member since October 1994. Kate is a retired chartered physiotherapist and is still very active in the voluntary sector.
She is one of the co-founders of the NeuroMuscular Centre, is a keen supporter of the Muscular Dystrophy Campaign and is a member of her local branch.
Kirsty, 30, has been a panel member since 2004.
She has spinal muscular atrophy type 2 and so is very familiar with many of the challenges faced by children and adults who have muscle disease.
Jane joined the panel in 2005. She is the mother of Murray who has Duchenne muscular dystrophy, and Finella.
She qualified as an osteopath in 1980 and since 1981 has run her own practice in Worcestershire. Jane has worked with the British Olympic Junior Judo squad and lectured in diagnosis and clinical skills at the British School of Osteopathy. She is a professional classical soprano and has been a member of the Duo Dolcetini a pure soprano duo since 1990, using concerts to raise money for the charity.
Karen joined the panel in 2011. She is 33 years old, a manifesting carrier of Duchenne muscular dystrophy and has been a permanent wheelchair user for the past 8 years. Karen also has two nephews with Duchenne muscular dystrophy.
Karen has an OU LLB Law degree and although she has not been able to go into a legal profession, she works at her local Citizens Advice Bureau, both as a paid advice session supervisor and a voluntary advisor.
Knowing the struggles that people with neuromuscular conditions have to go through first hand, she joined the panel in the hopes she could make grants towards items of equipment that would help make the lives of other affected by these conditions a little easier.
Phillippa Farrant (Trustee Representative)
Phillippa was invited to join the panel in 2011. She has a 20 year old son, Daniel, who has Duchenne muscular dystrophy. She is also a trustee at Muscular Dystrophy Campaign and Chair of the Duchenne Family Support Group - a national group that supports families all over the UK. She therefore has quite an insight into living with the condition as well as what the equipment needs of a family are.