We support everyone affected by muscle-wasting conditions, as well as clinical, education, health and social care professionals
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How we help you

 

Living with muscular dystrophy

Meet Martyn Sibley. He is a lifelong wheelchair user and cannot lift anything heavier than a book or shower by himself, but there are lots of things he can do. He is an entrepreneur, has a Masters degree, is the co-editor of an online magazine and is an avid blogger. He has travelled the world, drives his own car and lives independently in London.

Martyn Sibley describes himself as a regular guy who happens to have a disability called spinal muscular atrophy.

Martyn believes that with the right support, disabled people can thrive. His message to disabled people is to follow your dreams, be aspirational, identify the barriers relevant to you and your impairment, never let your disability stop you and always enjoy life.

Preparing for school

Children with muscular dystrophy or related neuromuscular conditions face a number of challenges throughout their school life. Their condition may mean that they have difficulty learning or accessing school facilities, or some might face discrimination in their educational life.

Living in your own home

Whether you need to make adaptations to the property you are living in, are planning to move into your first home or are moving to a new area, there are lots of considerations to be aware of relating to your care and support arrangements.

In the workplace

The Disability Discrimination Act 1995 (DDA) and government initiatives like the Guaranteed Interview Scheme, Access to Work and the New Deal for Disabled People were introduced to ensure that young disabled people have more opportunities to get into and retain employment.

Will I still be able to have sex?

 Most types of muscular dystrophy and related neuromuscular conditions do not affect sexual function or desire. And while muscle weakness may make positioning and having sex more challenging, there are many aids that can help.

Going on holiday

A break or a holiday is important. It gives us something to look forward to, time to enjoy our families or perhaps some time to ourselves. Having muscular dystrophy or a related neuromuscular condition means that you may face challenges that other travellers do not have to consider.