Becoming an adult - Transition for young men with Duchenne muscular dystrophy
This report summarises a study into transition to adulthood for young men with Duchenne by conducted by David Abbott and Professor John Carpenter at the University of Bristol.
This report focuses on the transition from childhood to adulthood for young men with Duchenne - how it affects their families and the key professionals who support them. It explores the social and psychological aspects of this major life stage and the transition from one set of services to another.
It challenges service providers in the NHS, social services and education to act upon its findings and help young adults with muscle disease to expect the same high quality services as are increasingly being received by children with muscle disease.
Published: 16 Apr 2010
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People who downloaded this also downloaded:
- Becoming a man - Life with Duchenne muscular dystrophy Booklet exploring the experiences of the 40 young men who were consulted in David Abbott and Professor John Carpenter's study on transition.
- Guide to Transition for 13-25 year olds with muscle disease Guide for young people aged 13-25. Discusses funding, lifestyle, medical, practical and social support issues and directs professionals.
- Duchenne muscular dystrophy Factsheet about Duchenne muscular dystrophy, including causes, progression and management of symptoms.
- Physiotheraphy management for Duchenne muscular dystrophy A5 guide physiotherapy booklet advising on home physiotherapy for young people with Duchenne md. To be used with the Physiotherapy management for Duchenne muscular dystrophy exercise cards and chart.