Guide to Transition for 13-25 year olds with muscle disease
This guide provides advice about services and entitlements and signposts where to go for further information and support. It includes feedback and recommendations from young people with muscle disease on their experiences of becoming an adult, information for professionals and general guidance for everyone, including funding, lifestyle, medical, practical, social support and relationships.
This Guide to Transition for 13-25 year olds with muscle disease is also available to order in print.
Author: Muscular Dystrophy CampaignPublished: 30 Apr 2010
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People who downloaded this also downloaded:
- Duchenne muscular dystrophy Factsheet about Duchenne muscular dystrophy, including causes, progression and management of symptoms.
- Becoming a man - Life with Duchenne muscular dystrophy Booklet exploring the experiences of the 40 young men who were consulted in David Abbott and Professor John Carpenter's study on transition.
- Becoming an adult - Transition for young men with Duchenne muscular dystrophy A4 report focusing on how transition affects young men with Duchenne, their families and the key professionals who support them.
- Physiotheraphy management for Duchenne muscular dystrophy A5 guide physiotherapy booklet advising on home physiotherapy for young people with Duchenne md. To be used with the Physiotherapy management for Duchenne muscular dystrophy exercise cards and chart.
