Practical issues

•  About me and my MD Personal A5 information card for people with muscle disease to ensure that anyone who doesn't know about you or your condition reads it to understand your needs better.
•  Adaptations manual CD guide giving comprehensive information on making appropriate and cost-effective home adaptations for people with muscle disease.
•  Adult self management pack A4 folder guide which gives essential information on a wide range of medical and daily living issues for those diagnosed with muscle disease as adults.
•  Chairs to help with “sit to stand” Factsheet giving details of specialist equipment to help adults with muscular dystrophy move from a sitting position to standing.
•  Education Factsheet giving information for parents about planning ther child's education and supporting them throughout school.
•  Equipment to help you get up from the floor Factsheet giving details of specialist equipment to help adults with muscular dystrophy who have difficulty getting up from the floor.
•  Exercise and orthoses guidelines Factsheet giving advice about exercises and splints to improve strength and flexibility in children with muscular dystrophy.
•  Guide to Transition for 13-25 year olds with muscle disease Guide for young people aged 13-25. Discusses funding, lifestyle, medical, practical and social support issues and directs professionals.
•  Inclusive education for children with muscular dystrophy Guidebook which gives advice and support for education professionals working with pupils who have muscular dystrophy.
•  Information technology Factsheet giving information about IT equipment which enables people with muscular dystrophy to use computers independently.

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