A booklist on the muscular dystrophies and neuromuscular disorders

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The majority of these books are aimed at the professional; however, others may find them useful. A number of these books may be available from your public library, medical or college library or through the inter library loan service provided by libraries. Purchase price may vary from that listed here.

Compiled by Jane Kenyon, Information Officer for the Muscular Dystrophy Campaign.

Contents:


Muscular Dystrophy: The Facts

Alan E.H.Emery, Oxford University Press (2000) (ISBN 0-19-263217 5) Paperback £8.99
This is a comprehensive, easy to understand book about the muscular dystrophies, the genetics involved and aspects of caring for someone with a neuromuscular condition, particularly Duchenne muscular dystrophy.

The Muscular Dystrophies

Alan E.H.Emery, Oxford University Press (2001) (ISBN 0192632914) £69.50

Muscular Dystrophy in Children: A Guide for Families

Irwin M Siegal, Demos Medical Publishing (1999) (ISBN 1888799331) £14.09

Raising a Child with a Neuromuscular Disorder

Charlotte E Thompson, Oxford University Press (1999) (ISBN 0-19- 512843-5)
This is an American book but is available here in the UK.

Childhealth Care Nursing Concepts, Theory and Practice

Edited by B.Carter and A.K.Dearmun. Blackwell Scientific (1995)
(ISBN 0632-03689-3) £19.99
This is a general work and includes a short contribution by members of the Muscular Dystrophy Campaign on nursing a child with spinal muscular atrophy and a boy with Duchenne muscular dystrophy.

Myotonic Dystrophy: The Facts

Peter S. Harper, OUP (2002) £10.99 (ISBN 0-1985-2586-9)
Written by a world authority on the condition, this book is recommended for all those affected by myotonic dystrophy.

Myotonic Dystrophy

Peter S.Harper, Bailliere (3rd edition)(2001) (ISBN 0-7020- 21520) £50.00
The book covers inheritance, preclinical detection, genetic counselling, management and therapy. Although not specifically aimed at the patient (see above) with myotonic dystrophy, many people with this condition may find it helpful.

Numb Toes and Aching Soles: Coping with Peripheral Neuropathy

John A Senneff, MedPress (1999) .n.p. ISBN 0-9671107-1-8
A helpful American book, the author has a peripheral neuropathy and has written it for those people with the same diagnosis.

Charcot-Marie–Tooth Disease: A Practical Guide

CMT International UK, CMT UK (2000) (ISBN 0-9533883-0-1)
A guide compiled by the Charcot-Marie-Tooth disease (aka hereditary motor and sensory neuropathies) support group for those diagnosed with this condition.

Duchenne Muscular Dystrophy

by Alan E.H.Emery, Oxford Medical Publications (2nd Ed) (1993)
(ISBN 0-19-262370-2)) £50.00
This comprehensive edition provides an introduction and history of the condition, clinical features, confirmation of the diagnosis, differential diagnosis, involvement of tissues other than skeletal muscle, biochemistry of Duchenne muscular dystrophy, genetics, molecular pathology, pathogenesis, prevention, genetic counselling and management.

Handbook of Muscle Disease

Ed Russell J.M.Lane. Marcel Dekker (1996) (ISBN 0 8247 9494X) £128.70

Neuromuscular Disorders: Clinical and Molecular Genetics

Edited by Alan E.H.Emery
John Wiley & Sons (1998) (ISBN 0471978175) £75.00

Muscle Diseases

Ed A.H.V. Schapira and Robert C.Griggs, Butterworth Heinemann (1999) (ISBN 0-7506-7085-1)

A History of a Genetic Disease: Duchenne Muscular Dystrophy or Meryons Disease

Alan E.H.Emery and Marcia L.H.Emery. Royal Society of Medicine (1995) (ISBN 185315 2498) £20.00

Muscle Disorders in Childhood

Victor Dubowitz. W.B.Saunders Co.Ltd (2nd ed) (1995) (ISBN 0702-014370) £70.00
A very thorough textbook which is aimed at the clinician and other medical professionals.

Diagnostic Criteria for Neuromuscular Disorders

edited by Alan E.H.Emery
European Neuromuscular Centre (2nd Ed) (1997) (ISBN 185315 301 X)
(Available from the Royal Society of Medicine)
This publication provides the criteria, with notes, on the current status of DNA findings relevant to each neuromuscular disorder. Aimed at professionals working within the field.

Journals with articles about muscular dystrophy

The following journals have published articles about muscular dystrophy and the allied neuromuscular conditions.

American Journal of Physical Medicine ISSN: 0002-9491
British Medical Journal ISSN: 0007-1447
Developmental Medicine and Child Neurology ISSN: 0012-1622
Journal of Child Neurology ISSN: 0883 0738
Journal of The Neurological Sciences ISSN: 0022-510X
Medicine and Science in Sports and Exercise ISSN: 0195-9131
Muscle and Nerve ISSN: 0148-639X
Nature ISSN: 0028-0836
New Scientist ISSN: 0028-6664
Physical Therapy ISSN: 0031-9023


The Neuromuscular Disorders

This is a journal edited by Victor Dubowitz that is published eight times a year. The journals contain a collection of medical research updates and developments in the field of genetics, and includes short articles about the neuromuscular conditions. (ISSN 0960-8966) Annual subscription €748. Suitable for professionals and researchers.