Factsheets covering a range of issues about living with a neuromuscular condition are listed below.

See also: medical conditions factsheets and medical issues factsheets

A booklist on the muscular dystrophies and neuromuscular disorders

This factsheet lists books and journals that are available from public libraries, medical and college libraries on the different muscular dystrophies.

Education

This factsheet gives general information about advisory organisations and publications concerning childrens' and young adults' education up to the age of 18

Holiday information

This factsheet gives advice on holidays and contact details of organisations that help arrange holidays.

Transport

This factsheet gives general information on public transport, vehicle finance, assessment centres, advisory organisations and useful publications.

Raising funds for individuals with muscular dystrophy

This factsheet lists some organisations that give grants as well as other ways of fundraising

Clothing and fashion for wheelchair users

Information on clothing styles, and tips when shopping; useful publications; companies specialising in clothing for wheelchair users and clothing for people with scoliosis

Let’s talk about feelings: counselling

This factsheet explains how some people deal with the information when they are first diagnosed. It explores counselling and list other agencies that can offer support at this difficult time

Healthy eating for children with neuromuscular conditions

Information for children with neuromuscular conditions about healthy eating

Dream trips and wishes for children and young adults

Information about helping funding holidays for children and adults

Selling or donating second-hand equipment

Information about selling or donating second-hand equipment

Organisations that provide information, advice and support on personal relationships and sexuality

Organisations that provide information, advice and support on personal relationships and sexuality