Factsheets covering medical issues for people with neuromuscular conditions are listed below.

See also medical conditions factsheets
and living issues factsheets

Anaesthetics

This factsheet describes the care that has to be taken by any one with or has a family history of nueromuscular disorders.

Carrier detection tests and prenatal diagnosis

This factsheet descibes inheritance patterns of inherited neuromuscular conditions. It describes tests and prenatal diagnosis.

Gastrostomy

A factsheet about gastrostomy, covering what it is and why one might be needed

Heart check

This factsheet describes which dystrophies affect the heart, and how the heart can be affected

Inheritance and the muscular dystrophies

This factsheet describes the different inheritance patterns to help families understand what the risk is of the dystrophy happening again.

Making breathing easier

This factsheet explores the different things that can be done to help make breathing easier.

Muscle biopsies

A factsheet about muscle biopsies and the importance they play in accurate diagnosis of muscle wasting conditions

Newly diagnosed?

Factsheet pointing out some of the places where one can get information when first diagnosed. Lists important telephone numbers and websites.

Pregnancy and reproduction in muscle disorders

This factsheet explores what effects pregnancy has on muscular dystrophy, genetic implications, prenatal diagnosis if condition is genetic.

Questions about ventilation to ask your consultant

This factsheet lists some of the suggested questions to ask your consultant when discussing ventilataion.

Risks of dehydration (lack of water)

This is the factsheet about how to prevent dehydration (lack of water)

Surgical correction of spinal deformity in muscular dystrophy and other neuromuscular disorders

This factsheet describes the surgical correction of spinal deformity (Scoliosis), how it develops the effects and what can be done.

Alternative therapies

This factsheet lists alternative therapies available. It is important to note that individuals who wish to pursue these should first consult their doctor/clinician.

Guidelines for exercise and orthoses in children with neuromuscular disorders

Information for physiotherapists who are working with children with a neuromuscular condition

Steroids and Duchenne muscular dystrophy - some questions and answers

Factsheet covering the use of steroids for boys with Duchenne Muscular Dystrophy (DMD)

Nutrition and feeding in individuals with neuromuscular conditions

Information about nutrition and feeding for people with muscular dystrophy and other neuromuscular conditions

Spinal surgery - questions to ask

Information about spinal surgery and questions that patients and their families might ask before the operation

Pressure ulcers

Information about pressure ulcers, how to avoid them and how to treat them