Questions about ventilation to ask your consultant

Here is a list of questions about ventilation that it may be useful to ask your child’s consultant.

Contents:

• A few questions to ask your child’s consultant.
• Other relevant information

A few questions to ask your child’s consultant.

1. What are the signs that I should look for that might indicate respiratory deterioration?

2. What should I do if I am concerned about my sons’ health?

3. What symptoms or signs need immediate attention?

4. What symptoms or signs can wait until his next follow-up clinic?

5. How often should we be seen?

6. What respiratory tests should my son have regularly?

7. Will he need blood tests?

8. Does he have to go into hospital for sleep studies or can they be done at home?

9. When do we start respiratory function tests?

10. What can we do to keep my son healthy?

11. What should we do if he gets a chest infection?

12. Should we have the flu jab or any other vaccinations?

13. If my son needs to be ventilated which specialist do we see and do they have experience of boys with Duchenne muscular dystrophy?

14. Is there a home ventilation team in our area?

15. Are there any other families in the area whose son is ventilated who might be willing to talk to us?

Other relevant information

Read the Making breathing easier factsheet