List of international neuromuscular organisations
The Muscular Dystrophy Campaign has listed some of the international neuromuscular organisations on this page. Please be aware that this is not an endorsement of the organisations listed.
Last updated: 26 July 2007.
Australia - Muscular Dystrophy Association of New South Wales
Locked Bag 9932, Beaconsfield NSW 2014
T: [61]2 9697 9111
F: [61]2 9697 9092
info@mdansw.org
http://www.mdansw.org.au
Australia - Muscular Dystrophy Association Inc. South Australia
GPO Box 414
Adelaide SA 5001
T: [61]8 8234 5266
F: [61]8 8234 5866
info@mdasa.org.au
http://www.mdasa.org.au
Australia - Muscular Dystrophy Association of WA (Inc)
Brooke Anthony
Fundraising & Events Manager
PO Box 328,
West Perth WA 6872
T: [61]8 9382 2700
F: [61]8 9346 3487
mda@cyllene.uwa.edu.au
http://www.mdawa.asn.au
Australia - Muscular Dystrophy Association Ltd
PO Box 2200, North Melbourne Victoria 3051
T: [61]3 9320 9555
F: [61]3 9320 9595
bms@mda.org.au
http://www.mda.org.au
Australia - Muscular Dystrophy Association Queensland
Locked Bag 3000,
Spring Hill QLD 4004
T: [61]7 3016 1800
F: [61]7 3831 2666
http://www.mdaq.com.au
Belgium - Belgian Association of Neuromuscular Diseases
Assoc Belge contre les Maladies Neuro-Muscularies (ASBL)
Alléé des champs de Blé, 64
7033 Mons (Cuesmes)
T: [32]65 841 844
info@abmm.be
http://www.abmm.be
Belgium - Flemish Muscular Disorders Association
Vlaamse Vereniging Neuromusculaire Aandoeningen (NEMA)
Nadine Albergs
Helgbeekplein 1 bus 25
3500 Hasselt
T: [32]11 72 31 87
sekretariaat@nema.be
http://www.nema.be/
Brazil - Muscular Dystrophy Association
Associacão de Amigos dos Portadores de Distrofia Muscular (AADM)
T: [55]16 3919 3028
http://www.aadm.com.br
Canada - Muscular Dystrophy Association of Canada
2345 Yonge Street, Suite 900 Toronto
Ontario M4P 2E5
T: [1]866 687 2538
F: [1]416 488 7523
info@muscle.ca
http://www.muscle.ca
Croatia - Union of Muscular Dystrophy Societies of Croatia
Nova Ves 44, 10000 Zagreb
T: [385]1 4666 849
sddh@zg.t-com.hr
http://www.sddh.hr
Cyprus - The Cyprus Institute of Neurology and Genetics
The Cyprus Institute of Neurology and Genetics
Po Box 23462
1683 Nicosia
CYPRUS
T: [357]22 358 600
http://www.cing.ac.cy
Czech Republic - Muscular Dystrophy Association
Asociace muskulárnich dystrofiků v ČR
Petýrkova 1953/24
PRAHA 4 – Chodov
148 00
Czech Republic
T: [420]7 9337 77
F: [420]7 9337 77
amd@cmail.cz
http://www.md-cz.org
Denmark - Muskelsvindfonden
Kongsvag Allé 23
DK-8000 Århus C
T: [45]8948 2222
F: [45]3962 2205
mrf@muskelsvindfonden.dk
http://www.muskelsvindfonden.dk
Estonia - Estonian Association of Muscular Disorders
Eesti Lihasehaigete Selts (ELS)
els@els.ee
http://www.els.ee
Europeean Alliance of Neuromuscular Disorders Associations (EAMDA)
4, Gzira Road
Gzira GZR 04
Malta
eamda@hotmail.com
http://www.eamda.net
Finland - The Muscle Disability Association
Lihastautiliitto ry
Läntinen Pitkäkatu 35,
20100 Turku
T: [358]2 273 9700
F: [358]2 273 9701
lihastautiliitto@lihastautiliitto.fi
http://www.lihastautiliitto.fi
France - French Myopathy Association
Association Francaise contre les Myopathies (AFM)
1 Rue de l’Internationale
BP 59
91002 Evry Cedex
T: [33]1 69 47 2828
http://www.afm-france.org
Germany - Association for muscle disorders
Deutsche Gesellschaft fur Muskellkranke eV
Im Moos 4
79112 Freiburg
T: [49]7 665 9447 20
F: [49]7 665 9447 20
info@dgm.org
http://www.dgm.org
Greece - MDA Hellas
info@mdahellas.gr
http://www.mdahellas.gr
India - Muscular Dystrophy Association
c/o Molecular Diagnostic Facility
Sundaram Medical Foundation
Dr Rangarajan Memorial Hospital
Shanti Colony, 4th Avenue
Anna Nagar, Chennai 600 040
T: [91]44 2626 8844 Ext: 349 or 350
F: [91]44 2628 4257
ranil@vsnl.com
http://www.mdaindia.org
Ireland - Muscular Dystrophy Ireland (MDI)
71-72 North Brunswick Street
Dublin 7
T: [353]1 872 1501
F: [353]1 872 4482
info@mdi.ie
http://www.mdi.ie
Italy - National Muscular Dystrophy Association
Unione Italiana Lotta alla Distrofia Muscolare - Direzione Nazionale(UILDM)
Via P.P. Vergerio
19 - 35126 Padova
T: [39]49 802 1001 or 757 361
F: [39]49 757 033
http://www.uildm.org
Japan Muscular Dystrophy Association, Corp.
National recuperations Education Center
2-2-2 Nishi-Waseda, Shinjuko-Ku
Tokyo 162-0051
T: [81]3 5273 2930
F: [81]3 3208 7030
http://www.jmda.or.jp
Jordan Muscular Dystrophy Association
Al-Hussein Society for the habilitation/rehabilitation of the physically challanged
PO Box 5102
Amman 11183
T: [962]6 581 7598 or 99
F: [962]6 581 7613
ahsrehab@wanadoo.jo
http://www.alhusseinrehab.org.jo
Kosova - Muscular Dystrophy Association
Str, Ardian Krasnici N:6/22
Prishtina, Kosovo
T: (0)38 247 721 or (0)44 222 659
gimi_mda@yahoo.com
Malta - Muscular Dystrophy Group of Malta
4, Gzira Road,
Gzira GZR 04
MALTA
T: [356]21 346 688
F: [356]21 318 024
mdg@mdgmalta.com
http://www.mdgmalta.com
Mexico - Muscular Dystrophy Association
Sociedad Mexicana de la Distrofia Muscular AC
Calz. México Xochimilco No. 289
Col. Arenal de Guadalope
Delagación Tlalpan, C.P. 14389
T: [52]55 5999 1000 Ext. 13230
distrofhiamx@yahoo.com.mx
http://www.cnr.gob.mx/SMDM
Nepal - Muscular Dystrophy Foundation - Nepal (MDF-Nepal)
G.P.O Box 8975 EPC 697
Lalitpur, Kathmandu
T: [977]1 554 6984
info@mdfnepal.wlink.com.np
http://www.mdfnepal.org.np
Netherlands - Muscular Dystrophy Association
Vereniging Spierziekten Nederland
Lt Gen can Heutslaan 6
3743 JN, Baarn
T: [31]35 548 0480
vsn@vsn.nl
http://www.vsn.nl
New Zealand - Muscular Dystrophy Association
PO Box 16-238
Sandringham
Auckland 1030
T: [64]9 815 0247
F: [64]9 815 7260
info@mda.org.nz
http://www.mda.org.nz
Norway - Muscular Dystrophy Association
Foreningen for Muskelsyke
Bergsalléen 21
0854 Oslo
T: [47]2321 5450
ffm@ffm.no
http://www.ffm.no
Peru - Muscular Dystrophy Association
Asociacion de Distrofia Muscular del Peru - ADM Peru
Av. Del Ejercito 660-F
Miraflores - Lima 18
Peru - Sud América
T: [51]1 22 6322 or 6472
F: [51]1 241 3140
admperu@ec-red.com
http://admperu.cjb.net
Poland - Neuromuscular Association
Polskie Towarzystar Corób Nerwowo-mieśnionych
UL.SW. BONIFACEGO 10
02-914 Warszawa
T: [48]22 642 7507
ptchnm@idn.org.pl
http://www.idn.org.pl/tzchm
Romania - Muscular Dystrophy Association
Asociatia Distoficilor Muscular din Romania
707085-Lunca Cetatuii B1.65
Tr. II, parter, Ap 3
Com. Ciurea
Judetul Iasi
T: [40]232 296 075
F: [40]232 296 075
admr_filialaiasi@yahoo.com
http://www.admiasi.3x.ro
Singapore - Muscular Dystrophy Association
MDAS
9 Bishan Place #06-01
Junction 8
Singapore 579837
T: [65]6259 6933
F: [65]6259 6911
mdas@mdas.org.sg
http://www.mdas.org.sg
Slovakia - The Muscular Dystrophy Organisation
Organizácia Muskulárnych Dystrofikov v Slovenskej Republike
Banśelova 4
821 04 Bratislava 2
T: [421]2 4341 1686
F: [421]2 4341 0474
http://www.omdvsr.sk
Slovenia - Muscular Dystrophy Association
Društvo distrofikov Slovenije
p.p. 2618, Linhartova 1/111
1001 Ljubljana
T: [386]1 4720 500
http://www.drustvo-distrofikov.si
South Africa - Muscular Dystrophy Foundation of South Africa
National Office PO Box 1535
Pinegowrie 2123
T: [27]11 789 7634
national@mdsa.org.za
http://www.mdsa.org.za
Spain - Neuromuscular Association
Federacioń Española de Enfermedades Neuro Musculares (Federacioń ASEM)
C. Jordi de Sant Jordi
26-28 Bajos
08027 Barcelona
T: [34]93 4516 544
F: [34]93 4083 695
asem15@suport.org
http://www.asem-esp.org
Spain - Duesto University
A website in Spanish with information on neuromuscular diseases in Spain.
http://www.neuromuscular.deusto.es
Swedish Assoc of Neurogically Disabled
Box 49 084
S-100 28 Stockholm
T: [46]8 677 7010
nhr@nhr.se
http://www.nhr.se
Sweden - The Swedish National Association for Disabled Children
St Eriks Gatan 44
S-104 20 Stockholm
T: [46]8 677 7300
info@riks.rub.se
http://www.rbu.se
Switzerland - The Myopathy Association
Association de la Suisse Romande et Italienne contre les Myopathies (ASRIM)
12 ch. de la Traverse 12
CP 179
CH-1170 Aubonne
1170 AUBONNE
SWITZERLAND
T: [41]21 808 7411
F: [41]21 808 8111
info@asrim.ch
http://www.asrim.ch
Switzerland - Muscular Dystrophy Association
Schweizerische Gesellschaft fur Muskelkranke (SGMK)
Kanzleistrasse 80
8004 Zürich
Switzerland
T: (41)44 245 8030
F: (41)44 245 8031
info@muskelkrank.ch
http://www.muskelkrank.ch
Turkey - Spinal Muscular Atrophy support group
http://www.smagrubu.com
United Kingdom - Muscular Dystrophy Campaign
61 Southwark Street
London SE1 0HL
ENGLAND
T: [44]20 7803 4800
F: [44]20 7401 3495
info@muscular-dystrophy.org
http://www.muscular-dystrophy.org
United States of America - Muscular Dystrophy Association –USA
National Headquarters
3300 E. Sunrise Drive
Tucson
AZ 857 18
T: [1]800 344 4863
mda@mdausa.org
http://www.mdausa.org
Yugoslavia - Muscular Dystrophy Association
Udruženje Distrofičara Jugoslavije
Kragujevac, ul. Kosovska b.b.
T: [381]34 305 875
F: [381]34 305 876
kragujevac@udruzenjedistroficara.org.yu
http://www.udruzenjedistroficara.org.yu
Last updated: 26 July 2007.
Australia - Muscular Dystrophy Association of New South Wales
Locked Bag 9932, Beaconsfield NSW 2014
T: [61]2 9697 9111
F: [61]2 9697 9092
info@mdansw.org
http://www.mdansw.org.au
Australia - Muscular Dystrophy Association Inc. South Australia
GPO Box 414
Adelaide SA 5001
T: [61]8 8234 5266
F: [61]8 8234 5866
info@mdasa.org.au
http://www.mdasa.org.au
Australia - Muscular Dystrophy Association of WA (Inc)
Brooke Anthony
Fundraising & Events Manager
PO Box 328,
West Perth WA 6872
T: [61]8 9382 2700
F: [61]8 9346 3487
mda@cyllene.uwa.edu.au
http://www.mdawa.asn.au
Australia - Muscular Dystrophy Association Ltd
PO Box 2200, North Melbourne Victoria 3051
T: [61]3 9320 9555
F: [61]3 9320 9595
bms@mda.org.au
http://www.mda.org.au
Australia - Muscular Dystrophy Association Queensland
Locked Bag 3000,
Spring Hill QLD 4004
T: [61]7 3016 1800
F: [61]7 3831 2666
http://www.mdaq.com.au
Belgium - Belgian Association of Neuromuscular Diseases
Assoc Belge contre les Maladies Neuro-Muscularies (ASBL)
Alléé des champs de Blé, 64
7033 Mons (Cuesmes)
T: [32]65 841 844
info@abmm.be
http://www.abmm.be
Belgium - Flemish Muscular Disorders Association
Vlaamse Vereniging Neuromusculaire Aandoeningen (NEMA)
Nadine Albergs
Helgbeekplein 1 bus 25
3500 Hasselt
T: [32]11 72 31 87
sekretariaat@nema.be
http://www.nema.be/
Brazil - Muscular Dystrophy Association
Associacão de Amigos dos Portadores de Distrofia Muscular (AADM)
T: [55]16 3919 3028
http://www.aadm.com.br
Canada - Muscular Dystrophy Association of Canada
2345 Yonge Street, Suite 900 Toronto
Ontario M4P 2E5
T: [1]866 687 2538
F: [1]416 488 7523
info@muscle.ca
http://www.muscle.ca
Croatia - Union of Muscular Dystrophy Societies of Croatia
Nova Ves 44, 10000 Zagreb
T: [385]1 4666 849
sddh@zg.t-com.hr
http://www.sddh.hr
Cyprus - The Cyprus Institute of Neurology and Genetics
The Cyprus Institute of Neurology and Genetics
Po Box 23462
1683 Nicosia
CYPRUS
T: [357]22 358 600
http://www.cing.ac.cy
Czech Republic - Muscular Dystrophy Association
Asociace muskulárnich dystrofiků v ČR
Petýrkova 1953/24
PRAHA 4 – Chodov
148 00
Czech Republic
T: [420]7 9337 77
F: [420]7 9337 77
amd@cmail.cz
http://www.md-cz.org
Denmark - Muskelsvindfonden
Kongsvag Allé 23
DK-8000 Århus C
T: [45]8948 2222
F: [45]3962 2205
mrf@muskelsvindfonden.dk
http://www.muskelsvindfonden.dk
Estonia - Estonian Association of Muscular Disorders
Eesti Lihasehaigete Selts (ELS)
els@els.ee
http://www.els.ee
Europeean Alliance of Neuromuscular Disorders Associations (EAMDA)
4, Gzira Road
Gzira GZR 04
Malta
eamda@hotmail.com
http://www.eamda.net
Finland - The Muscle Disability Association
Lihastautiliitto ry
Läntinen Pitkäkatu 35,
20100 Turku
T: [358]2 273 9700
F: [358]2 273 9701
lihastautiliitto@lihastautiliitto.fi
http://www.lihastautiliitto.fi
France - French Myopathy Association
Association Francaise contre les Myopathies (AFM)
1 Rue de l’Internationale
BP 59
91002 Evry Cedex
T: [33]1 69 47 2828
http://www.afm-france.org
Germany - Association for muscle disorders
Deutsche Gesellschaft fur Muskellkranke eV
Im Moos 4
79112 Freiburg
T: [49]7 665 9447 20
F: [49]7 665 9447 20
info@dgm.org
http://www.dgm.org
Greece - MDA Hellas
info@mdahellas.gr
http://www.mdahellas.gr
India - Muscular Dystrophy Association
c/o Molecular Diagnostic Facility
Sundaram Medical Foundation
Dr Rangarajan Memorial Hospital
Shanti Colony, 4th Avenue
Anna Nagar, Chennai 600 040
T: [91]44 2626 8844 Ext: 349 or 350
F: [91]44 2628 4257
ranil@vsnl.com
http://www.mdaindia.org
Ireland - Muscular Dystrophy Ireland (MDI)
71-72 North Brunswick Street
Dublin 7
T: [353]1 872 1501
F: [353]1 872 4482
info@mdi.ie
http://www.mdi.ie
Italy - National Muscular Dystrophy Association
Unione Italiana Lotta alla Distrofia Muscolare - Direzione Nazionale(UILDM)
Via P.P. Vergerio
19 - 35126 Padova
T: [39]49 802 1001 or 757 361
F: [39]49 757 033
http://www.uildm.org
Japan Muscular Dystrophy Association, Corp.
National recuperations Education Center
2-2-2 Nishi-Waseda, Shinjuko-Ku
Tokyo 162-0051
T: [81]3 5273 2930
F: [81]3 3208 7030
http://www.jmda.or.jp
Jordan Muscular Dystrophy Association
Al-Hussein Society for the habilitation/rehabilitation of the physically challanged
PO Box 5102
Amman 11183
T: [962]6 581 7598 or 99
F: [962]6 581 7613
ahsrehab@wanadoo.jo
http://www.alhusseinrehab.org.jo
Kosova - Muscular Dystrophy Association
Str, Ardian Krasnici N:6/22
Prishtina, Kosovo
T: (0)38 247 721 or (0)44 222 659
gimi_mda@yahoo.com
Malta - Muscular Dystrophy Group of Malta
4, Gzira Road,
Gzira GZR 04
MALTA
T: [356]21 346 688
F: [356]21 318 024
mdg@mdgmalta.com
http://www.mdgmalta.com
Mexico - Muscular Dystrophy Association
Sociedad Mexicana de la Distrofia Muscular AC
Calz. México Xochimilco No. 289
Col. Arenal de Guadalope
Delagación Tlalpan, C.P. 14389
T: [52]55 5999 1000 Ext. 13230
distrofhiamx@yahoo.com.mx
http://www.cnr.gob.mx/SMDM
Nepal - Muscular Dystrophy Foundation - Nepal (MDF-Nepal)
G.P.O Box 8975 EPC 697
Lalitpur, Kathmandu
T: [977]1 554 6984
info@mdfnepal.wlink.com.np
http://www.mdfnepal.org.np
Netherlands - Muscular Dystrophy Association
Vereniging Spierziekten Nederland
Lt Gen can Heutslaan 6
3743 JN, Baarn
T: [31]35 548 0480
vsn@vsn.nl
http://www.vsn.nl
New Zealand - Muscular Dystrophy Association
PO Box 16-238
Sandringham
Auckland 1030
T: [64]9 815 0247
F: [64]9 815 7260
info@mda.org.nz
http://www.mda.org.nz
Norway - Muscular Dystrophy Association
Foreningen for Muskelsyke
Bergsalléen 21
0854 Oslo
T: [47]2321 5450
ffm@ffm.no
http://www.ffm.no
Peru - Muscular Dystrophy Association
Asociacion de Distrofia Muscular del Peru - ADM Peru
Av. Del Ejercito 660-F
Miraflores - Lima 18
Peru - Sud América
T: [51]1 22 6322 or 6472
F: [51]1 241 3140
admperu@ec-red.com
http://admperu.cjb.net
Poland - Neuromuscular Association
Polskie Towarzystar Corób Nerwowo-mieśnionych
UL.SW. BONIFACEGO 10
02-914 Warszawa
T: [48]22 642 7507
ptchnm@idn.org.pl
http://www.idn.org.pl/tzchm
Romania - Muscular Dystrophy Association
Asociatia Distoficilor Muscular din Romania
707085-Lunca Cetatuii B1.65
Tr. II, parter, Ap 3
Com. Ciurea
Judetul Iasi
T: [40]232 296 075
F: [40]232 296 075
admr_filialaiasi@yahoo.com
http://www.admiasi.3x.ro
Singapore - Muscular Dystrophy Association
MDAS
9 Bishan Place #06-01
Junction 8
Singapore 579837
T: [65]6259 6933
F: [65]6259 6911
mdas@mdas.org.sg
http://www.mdas.org.sg
Slovakia - The Muscular Dystrophy Organisation
Organizácia Muskulárnych Dystrofikov v Slovenskej Republike
Banśelova 4
821 04 Bratislava 2
T: [421]2 4341 1686
F: [421]2 4341 0474
http://www.omdvsr.sk
Slovenia - Muscular Dystrophy Association
Društvo distrofikov Slovenije
p.p. 2618, Linhartova 1/111
1001 Ljubljana
T: [386]1 4720 500
http://www.drustvo-distrofikov.si
South Africa - Muscular Dystrophy Foundation of South Africa
National Office PO Box 1535
Pinegowrie 2123
T: [27]11 789 7634
national@mdsa.org.za
http://www.mdsa.org.za
Spain - Neuromuscular Association
Federacioń Española de Enfermedades Neuro Musculares (Federacioń ASEM)
C. Jordi de Sant Jordi
26-28 Bajos
08027 Barcelona
T: [34]93 4516 544
F: [34]93 4083 695
asem15@suport.org
http://www.asem-esp.org
Spain - Duesto University
A website in Spanish with information on neuromuscular diseases in Spain.
http://www.neuromuscular.deusto.es
Swedish Assoc of Neurogically Disabled
Box 49 084
S-100 28 Stockholm
T: [46]8 677 7010
nhr@nhr.se
http://www.nhr.se
Sweden - The Swedish National Association for Disabled Children
St Eriks Gatan 44
S-104 20 Stockholm
T: [46]8 677 7300
info@riks.rub.se
http://www.rbu.se
Switzerland - The Myopathy Association
Association de la Suisse Romande et Italienne contre les Myopathies (ASRIM)
12 ch. de la Traverse 12
CP 179
CH-1170 Aubonne
1170 AUBONNE
SWITZERLAND
T: [41]21 808 7411
F: [41]21 808 8111
info@asrim.ch
http://www.asrim.ch
Switzerland - Muscular Dystrophy Association
Schweizerische Gesellschaft fur Muskelkranke (SGMK)
Kanzleistrasse 80
8004 Zürich
Switzerland
T: (41)44 245 8030
F: (41)44 245 8031
info@muskelkrank.ch
http://www.muskelkrank.ch
Turkey - Spinal Muscular Atrophy support group
http://www.smagrubu.com
United Kingdom - Muscular Dystrophy Campaign
61 Southwark Street
London SE1 0HL
ENGLAND
T: [44]20 7803 4800
F: [44]20 7401 3495
info@muscular-dystrophy.org
http://www.muscular-dystrophy.org
United States of America - Muscular Dystrophy Association –USA
National Headquarters
3300 E. Sunrise Drive
Tucson
AZ 857 18
T: [1]800 344 4863
mda@mdausa.org
http://www.mdausa.org
Yugoslavia - Muscular Dystrophy Association
Udruženje Distrofičara Jugoslavije
Kragujevac, ul. Kosovska b.b.
T: [381]34 305 875
F: [381]34 305 876
kragujevac@udruzenjedistroficara.org.yu
http://www.udruzenjedistroficara.org.yu

