Other Useful Websites
Accessible Ireland
Accessible Ireland will allow you to source wheelchair facilities to suit your needs and enable you to enjoy Irish hospitality at its best.
T: Jill Millar: +353 (0)87 2400693
http://www.accessibleireland.com
Able Magazine
The leading disability publication in the UK. It includes a wide variety of celebrity interviews, informative articles and information on accessible holidays and legislation.
T: 0141 419 0044
http://www.ablemagazine.co.uk
Breathe On UK
Breathe On UK is a national children's charity that provides ongoing support to children on long-term ventlation.
Knights Cottage
Sackmore Lane
Marnhull
Dorset
DT10 1PN
T: 01258 820951
victoria@breatheon.org.uk
http://www.breatheon.org.uk/
Commision for Social Care Inspection
The independent Social Care watchdog for England and the lastest reports.
T: 0845 015 0120
http://www.csci.org.uk
Disability-Love
A non for profit online dating site for disabled people. It is free of charge and does not contain any commersial advertising.
http://www.Disability-Love.com
Lily Grace Trust Fund Site
Set up by Si and Liz Foat to help raise money for their daughter, Lily, who has recently been diagnosed with a Ullrich congenital muscular dystrophy.
http://www.lilygracetrust.org.uk
Muscular Help Foundation
The Muscular Help Foundation is a focal point for accelerating the eradication of muscle disorders through education, promoting awareness and generating funds.
T: 01763 274 658
http://www.musclehelp.com/
Myles Miller Trust
The Myles Miller Trust is a charity that has been set up to raise money to help three year-old Myles, who was born with congenital muscular dystrophy. The family home will need extensive alterations to allow for Myles' wheelchair and, after a long process of means testing, the local authority has refused to award any assistance whatsoever.
T: 01322 385 508
mylesmillertrust@aol.com
http://www.mylesmillertrust.org.uk
Myotubular myopathy resource group
Website containing information about three forms of myotubular myopathy, x-linked, autosomal recessive and autosomal dominant.
http://www.mtmrg.org/index.html
Nemaline Myopathy
Website is for those seeking information about nemaline myopathy
http://www.davidmcd.btinternet.co.uk/
The Chaseley Trust
Based in Eastbourne, The Chaseley Trust is a registered charity (1090579) which administers a residential, respite and day care nursing home for people with physical disabilities.
T: 01323 744200
info@chaseleytrust.org
http://www.chaseley.org.uk
uhad2bthere
The disability information website.
editor@uhad2bthere.co.uk
http://www.uhad2bthere.co.uk/
William Singeris National Centre for Myotonic Dystrophy Research
Part of the Children's Hospital of Western Ontario, the William Singeris National Centre for Myotonic Dystrophy Research is creating a Canadian natural history cohort study for children with congenital myotonic dystrophy, to whom it offers
specialist services.
T: 519-685-8484 (Canada)
http://www.chwo.org/programs/cmdr.htm
Accessible Ireland will allow you to source wheelchair facilities to suit your needs and enable you to enjoy Irish hospitality at its best.
T: Jill Millar: +353 (0)87 2400693
http://www.accessibleireland.com
Able Magazine
The leading disability publication in the UK. It includes a wide variety of celebrity interviews, informative articles and information on accessible holidays and legislation.
T: 0141 419 0044
http://www.ablemagazine.co.uk
Breathe On UK
Breathe On UK is a national children's charity that provides ongoing support to children on long-term ventlation.
Knights Cottage
Sackmore Lane
Marnhull
Dorset
DT10 1PN
T: 01258 820951
victoria@breatheon.org.uk
http://www.breatheon.org.uk/
Commision for Social Care Inspection
The independent Social Care watchdog for England and the lastest reports.
T: 0845 015 0120
http://www.csci.org.uk
Disability-Love
A non for profit online dating site for disabled people. It is free of charge and does not contain any commersial advertising.
http://www.Disability-Love.com
Lily Grace Trust Fund Site
Set up by Si and Liz Foat to help raise money for their daughter, Lily, who has recently been diagnosed with a Ullrich congenital muscular dystrophy.
http://www.lilygracetrust.org.uk
Muscular Help Foundation
The Muscular Help Foundation is a focal point for accelerating the eradication of muscle disorders through education, promoting awareness and generating funds.
T: 01763 274 658
http://www.musclehelp.com/
Myles Miller Trust
The Myles Miller Trust is a charity that has been set up to raise money to help three year-old Myles, who was born with congenital muscular dystrophy. The family home will need extensive alterations to allow for Myles' wheelchair and, after a long process of means testing, the local authority has refused to award any assistance whatsoever.
T: 01322 385 508
mylesmillertrust@aol.com
http://www.mylesmillertrust.org.uk
Myotubular myopathy resource group
Website containing information about three forms of myotubular myopathy, x-linked, autosomal recessive and autosomal dominant.
http://www.mtmrg.org/index.html
Nemaline Myopathy
Website is for those seeking information about nemaline myopathy
http://www.davidmcd.btinternet.co.uk/
The Chaseley Trust
Based in Eastbourne, The Chaseley Trust is a registered charity (1090579) which administers a residential, respite and day care nursing home for people with physical disabilities.
T: 01323 744200
info@chaseleytrust.org
http://www.chaseley.org.uk
uhad2bthere
The disability information website.
editor@uhad2bthere.co.uk
http://www.uhad2bthere.co.uk/
William Singeris National Centre for Myotonic Dystrophy Research
Part of the Children's Hospital of Western Ontario, the William Singeris National Centre for Myotonic Dystrophy Research is creating a Canadian natural history cohort study for children with congenital myotonic dystrophy, to whom it offers
specialist services.
T: 519-685-8484 (Canada)
http://www.chwo.org/programs/cmdr.htm

