An introductory guide for families with a child newly diagnosed with muscular dystrophy or an associated neuromuscular condition

This booklet is addressed to parents and/or carers of a child recently diagnosed with a neuromuscular condition.The aim is to offer support and information to families at this difficult time. The booklet is in question and answer format and includes the queries most often asked by parents.

This booklet is available free of charge to anyone who requests it. You can contact your MDC Care Advisor or the Information and Support Line on 020 7803 4800 or freephone 0800 652 6352 or email info@muscular-dystrophy.org

Download the booklet:

Newly diagnosed with a neuromuscular condition (385 kb)