Introductory guide for families with a child newly diagnosed with Duchenne muscular dystrophy

This booklet is addressed to parents and/or carers of a child recently diagnosed with Duchenne muscular dystrophy.The aim is to offer support and information to families at this difficult time.The booklet is in a question and answer format and includes the queries most often asked by parents.

This booklet is available free of charge to anyone who requests it. You can contact your MDC Care Advisor or the Information and Support line on 020 7803 4800 or freephone 0800 652 6352 or email info@muscular-dystrophy.org

You can also download it for free as a pdf - see below.

Download the booklet

Newly Diagnosed - Duchenne muscular dystrophy (252 kb)

Now avaliable...

The Muscular Dystrophy Campaign has published a second book in this series, called 'Duchenne muscular dystrophy - A guide for families with a child aged 5 –12 years'. This is also be available free of charge and as a download from the website; Duchenne muscular dystrophy: A guide for families with children aged 5-12