Isolation

In this section we have listed some tips on different ways to get out of isolation.

Contents:


Attend one of our events

The Muscular Dystrophy Campaign arranges various events throughout the year. It could be campaigning, fundraising or information days. All events offer a great opportunity to meet other families and individuals.

Events

Join the Community section on this website

The Community section features message boards that allows you to contact others, share information and express your views.

Community

Join a Muscular Dystrophy Campaign Branch

In this section you can read more about our Branches.

Branches

Join the Online Support Network

Would you like to volunteer as a contact person for peer support via email?

Some people affected by muscular dystrophy or related neuromuscular disorders feel isolated and would like to get in touch with people who are in a similar situation. The Muscular Dystrophy Campaign has launched the Online Support Network and as a member of the charity and the network you will get a list of people who like to provide peer support. If you would like to add your name to the list please contact Eva Wall on MDcommunity@muscular-dystrophy.org

Join a condition specific support group

Joining a support group can provide an opportunity to meet other people. In this section you can find the full list of different support groups.

Support groups

Join the Golden Freeway

The Golden Freeway is a website that features chat rooms for people with rare conditions.

www.thegoldenfreeway.com

Other groups

Below is a range of organisations that offers other ways to avoid feeling isolated:

  • Contact a Family - A website for families to make contact with other families affected by rare conditions.
    Helpline: 0808 808 3555
    Website: www.makingcontact.org

  • Outsiders - A dating site for physically, socially and mentally disabled people
    Tel: 020 7354 8291
    Website: www.outsiders.org.uk

  • PHAB - A national charity that encourage people with or without physical disabilities to come together and achieve complete integration with the wider community.
    Tel: 020 8667 9443.
    Website: www.phabengland.org.uk