Support

The Muscular Dystrophy Campaign provides a range of support services for people living with muscular dystrophy and related neuromuscular disorders. In this section, you can read more about different support services.

Contents:


Care and Support

The Muscular Dystrophy Campaign provides information and support to people with neuromuscular conditions and their families, through its Regional Care Advisors, its information service and a wide range of information materials and factsheets. The Joseph Patrick Trust can provide grants for individuals towards the cost of equipment and wheelchairs.

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Limb-girdle muscular dystrophy network

This network is for people affected by a Limb-girdle muscular dystrophy, their families and friends. The aims of the network will be to provide a forum for the exchange of information and to run events allowing people the opportunity of meeting one another.

If you would like to join the network, please call Jane Stein on 01865 234221 or Email:jane.stein@clneuro.ox.ac.uk

The Online Support Network

This network is for people affected by muscular dystrophy or related neuromuscular disorders, their families and friends. The aims of the network is to provide an opportunity for peers to communicate over emails and through chat rooms.

If you would like to join the network please contact Eva Wall on MDCommunity@muscular-dystrophy.org or call 020 7803 4800 or freephone
0800 652 6352.

Ways out of isolation

In this section you can find some tips on different ways to get out of isolation.

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Counselling

The Muscular Dystrophy Campaign has produced a factsheet called "Let's talk about feelings: counselling", which gives information about counselling and lists agencies that can offer emotional support.


Read the factsheet