What shall we say to other people about our child's condition?
Although it can be difficult to talk about your child’s condition at first, most parents find it useful to talk to close friends and family. You will need their support and understanding in the coming years. Be aware that at first, some people may be frightened or upset by the news and may not react in the way you expect.
As these conditions are usually genetic, other family members may like to be referred to their local clinical genetics department for advice. They should discuss this with their GP.
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