Friday 10 May 2013
Supporting breakthrough research for Duchenne muscular dystrophy
The Muscular Dystrophy Campaign is determined to tackle Duchenne muscular dystrophy head-on and has recently launched a Duchenne Research Breakthrough Fund. With funding and support, the charity aims to use the Fund to increase the pace of promising research projects that are potentially game-changing not just for some children affected by the devastating muscle-wasting condition, but for all.
Thanks to the support of families who have joined together for a series of launch events across the UK, the Duchenne Research Breakthrough Fund is going from strength to strength.
The Muscular Dystrophy Campaign plans to raise and invest £1.6million into a comprehensive programme of scientific research, infrastructure to ensure clinical trial readiness, and campaigning to ensure that patients in the UK have early access to emerging treatments and will soon be awarding new research grants.
Gary Kernahan, Head of Volunteer Fundraising for the Muscular Dystrophy Campaign said: "We launched the Duchenne Research Breakthrough Fund last year as life for a generation of children and young people living with Duchenne muscular dystrophy could be very different - research into treatments for the condition is it a critical stage. The Fund has been set up to raise the funds to increase the pace of promising projects and to ensure they are able to reach their conclusion. We are determined to tackle Duchenne muscular dystrophy, not just for some children - for all. "
Duchenne Research Breakthrough Fund Ambassadors Joanne Ashton from Liverpool, and Chris Govender from Kilmarnock, have both shared moving personal experiences at recent launch events. Joanne Ashton, whose seven-year-old son Liam has Duchenne muscular dystrophy said: "Research is at such a critical point now that I am positive if we can give this "big push" for the £1.6 million needed for the Duchenne Research Breakthrough Fund that for our children, and children in the future, the outcome will be totally different." Read Joanne's full story.
Chris Govender, whose four-year-old son Brandon has Duchenne muscular dystrophy, has launched Brandon's Fund, a family fund to raise awareness and funds. Chris said: "Rather than choosing a passive approach to this condition, Brandon's Fund has given us the opportunity to be proactive and positive. We have been attending research meetings with eminent scientists , as well as debates and lobbying sessions in Parliament, to help raise awareness of Duchenne muscular dystrophy and request funding for research. Read Chris' full story.
Scientific research into Duchenne muscular dystrophy is now at a critical stage, and your support is vital to move this research forward. A donation of just £35 would fund an hour of research that could lead us to a treatment or cure to improve and lengthen people's lives.