27 July 2007

The aims of the network will be to provide a forum for the exchange of information and to run events allowing people the opportunity of meeting one another. Members of the forum will receive priority invites to specific Limb Girdle muscular dystrophy events, updates on research issues and a regular newsletter. Membership of the forum will be free.

Jane Stein will co-ordinate the network but it would be nice to involve members/supporters in the running of the network. Please feel free to volunteer!

Jane is organising a Limb Girdle muscular dystrophy information day on Saturday 8 September in High Wycombe, Bucks and the forum will be discussed further there. All are welcome. For more information please do not hesitate to get in touch by calling 01865 234221 or by e mail: jane.stein@clneuro.ox.ac.uk  

Information provided on the returned forms will be shared with colleagues at the Muscular Dystrophy Campaign’s head office.

If you would like to join the network please complete the downloadable form below and return it to Jane Stein at the address stated.

LIMB GIRDLE MUSCULAR DYSTROPHY NETWORK (21 kb) [doc]