- 4 April 2013
Young disabled people 'left behind' in Northern Ireland Disabled people in Northern Ireland are being separated from friends at concerts, sports events and cinemas, are struggling to move out of home and are unable to socialise spontaneously according to a Trailblazers report out today.
- 2 April 2013
Concerns over impact of housing benefit changes Yesterday saw the start of the introduction of a series of benefit changes as part of the government’s welfare reform, most notably the single room subsidy which has become known as ‘bedroom tax’.
- 1 April 2013
Campaigning for neuromuscular service improvements in the new NHS The NHS reforms are formally introduced today and the Muscular Dystrophy Campaign has been preparing for these reforms by campaigning to ensure that neuromuscular services are maintained and improved in the new set-up.
- 26 March 2013
Bridging the gap – Department of Health to fund new neuromuscular project The Muscular Dystrophy Campaign is delighted to announce that a landmark new project will go ahead with funding support from the Department of Health of over £580,000 to aim to secure neuromuscular service developments.
- 21 March 2013
Research development boosted by Budget announcement Yesterday, the Government set out their budget plans for the year ahead.
- 21 March 2013
Concerns remain over 'bedroom tax' The Muscular Dystrophy Campaign has welcomed the decision by the Department for Work and Pensions (DWP) to drop its attempt to overturn the court of appeal ruling that the 'bedroom tax' is discriminatory towards disabled children and their families.
- 13 March 2013
Science and Technology Committee discuss potential treatments for Duchenne muscular dystrophy Today, the Science and Technology Committee held an oral evidence session as part of its inquiry into the transparency of clinical trials.
- 7 March 2013
Wales Network presents latest visions for service improvements The Wales Muscular Dystrophy Network yesterday presented a very encouraging updated version of the 'Vision document of the Welsh Neuromuscular Network' to the Cross Party Group on Muscular Dystrophy in the Welsh Assembly.
- 6 March 2013
Northern Ireland All Party Group analyses McCollum Report response The All Party Group on Muscular Dystrophy in the Northern Ireland Assembly met yesterday to discuss the Health Minister's response to the group's McCollum Report.
- 28 February 2013
Importance of specialist neuromuscular care highlighted on Rare Disease Day Today marks the sixth annual international Rare Disease Day, which is held to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families.