- 24 October 2012
Wales Muscular Dystrophy Network launches neuromuscular service plan
The Wales Muscular Dystrophy Network Team launched its vision for neuromuscular service provision in Wales at a meeting of the Cross Party Group on Muscular Dystrophy yesterday.
- 14 June 2012
Joining forces with politicians across the UK to campaign for better care and support
We have plenty of parliamentary action coming up over the next month across the UK and we need your support to convey the urgent need for better access to services.
- 24 May 2012
Welsh Health Minister challenged on muscular dystrophy care
The Welsh Government's Health Minister was challenged on improvements to specialist care in Wales yesterday at Health Questions in the Welsh Assembly.
- 26 April 2012
Top priorities for service improvements highlighted at Welsh Assembly meeting
Aneurin Bevan Health Board Chief Executive, Andrew Goodall, identified the top priorities for improving neuromuscular services in Wales at yesterday's Cross Party Group on Muscular Dystrophy meeting at the Welsh Assembly.
- 4 April 2012
Fighting for improved services in Wales
The Muscular Dystrophy Campaign's Chief Executive, Robert Meadowcroft, called for urgent service improvements in Wales at a conference in south Wales today.
- 1 February 2012
Campaigners highlight need for Welsh neuromuscular network with Health Minister
Campaigners met with Welsh Government Health Minister, Lesley Griffiths AM, yesterday to discuss the need to develop a neuromuscular network in Wales.
- 21 December 2011
Families in Wales take newborn screening service concerns to Health Board
Families in Wales took their concerns to Cardiff and Vale Health Board yesterday about the consequences of the newborn screening service for Duchenne muscular dystrophy in Wales being stopped at the end of 2011.
- 23 November 2011
Invest to Save – fighting to improve services in Wales
The Muscular Dystrophy Campaign today published its Invest to Save: Improving services and reducing costs in Wales report, which estimates that as much as £3.9million is wasted by NHS Wales each year on emergency care.
- 3 November 2011
Screening programme for Duchenne in Wales is being withdrawn
Families affected by the severe and devastating muscle-wasting disease, Duchenne muscular dystrophy, are speaking out today after ‘vital’ screening to diagnose newborns has been withdrawn.
- 19 October 2011
Welsh Health Minister hears patients’ concerns
Welsh Assembly Government Health Minister, Lesley Griffiths AM, yesterday heard patient and health professional concerns about the urgent need to develop further neuromuscular services in Wales at a meeting with the Muscular Dystrophy Campaign.