14 April 2008

The Muscular Dystrophy Campaign has had a prominent voice during the ongoing debate around the Human Fertilisation and Embryology (HFE) Bill. We have provided statements on licencing, the question of a free vote and, importantly, offered a patient view.

More recently on Friday 11 April Kathy Garcia, who has limb girdle muscular dystrophy and is a supporter of the charity, provided a patient perspective to The Sun national newspaper commenting on the importance of the Bill.

Read the article here: www.thesun.co.uk

Jennifer Gallacher, who is a member of the Muscular Dystrophy Campaign Teeside Branch, gave her opinion on BBC Look North Newcastle on Wednesday 2 April.

Muscular Dystrophy Campaign trustee and parent, Stephen McDonald, appeared on BBC News on Tuesday 1 April to put forward the view point of patient groups in the discussion around the Human and Fertilisation and Embryo (HFE) Bill.

You can watch the clip here: news.bbc.co.uk

The patient view was also communicated via a letter published in the Independent on Tuesday 1 April. It is from Robert Meadowcroft, Deputy Chief Executive, and responded to a front page article titled 'Is this a clump of cells? Or a living being with a soul? (dated 26 March 2008).

Read the article here: www.independent.co.uk/news/science

The letter can be read here: Letter to The Independent (22 kb) [doc]