- 23 October 2009
Encouraging new exon skipping results in a mouse model for Duchenne Researchers led by Prof. Dame Kay Davies in Oxford have reported encouraging results from a study where exon skipping was tested in a severely affected mouse model for the condition. - 22 October 2009
Minister avoids answering questions on threat to DLA Care services minister Phil Hope has refused to say which disability benefits the government is considering scrapping and “integrating” into local authority social services budgets. - 21 October 2009
GlaxoSmithKline and Prosensa sign multi-million dollar deal to develop treatments for Duchenne GlaxoSmithKline (GSK), one of the world’s leading pharmaceutical companies has formed an alliance with Dutch company Prosensa to develop exon skipping therapies for Duchenne muscular dystrophy. - 20 October 2009
Calling last orders on discrimination – young campaigners put leisure facilities to the test Pubs, clubs, cinemas, theatres, sports grounds and leisure facilities will be put under the spotlight from today, when 150 young disabled campaigners launch a nationwide undercover investigation into the accessibility of local leisure services. - 19 October 2009
Well done to our 910 mile cycling fundraisers! We would say a massive thank you to our cycling fundraising heroes David Pointer and Deb Cordingley who set off on a 910 bike journey across Britain. Together they raised a fantastic £1085 for the charity. - 16 October 2009
Trust calls for funding applications to support disabled people A trust that helps young disabled people through sport is calling for more applications. The Richard Overall Trust, founded in 2001, provides funding for sports equipment, training, courses, transport and attendance at sports events. - 14 October 2009
Calling all budding artists Do you have some artistic talent you would like to explore? Warwick University students are calling for people with a personal experience of muscle diseases to join their workshops to create art around the theme of ‘Ability’. - 14 October 2009
London’s lack of specialist care put in the spotlight A new Muscular Dystrophy Campaign report presented in Parliament today highlights that patients with muscle disease in London are battling a dangerously inferior and fragmented system of care. - 13 October 2009
Sign our petition calling for urgent improvements in specialist care! Our campaign’s team is fighting for high quality specialist neuromuscular care. Help us achieve the services that you deserve in your region. - 12 October 2009
Have a say in how the NHS uses your record A massive IT development programme over the next few years within the NHS will bring dramatic changes to patient records systems, which could both transform relationships and improve healthcare- and increase risks to patient privacy.


