- 3 February 2012
Statement on the Health and Social Care Bill Read our latest position statement on the Health and Social Care Bill. - 1 February 2012
Campaigners highlight need for Welsh neuromuscular network with Health Minister Campaigners met with Welsh Government Health Minister, Lesley Griffiths AM, yesterday to discuss the need to develop a neuromuscular network in Wales. - 31 January 2012
Fighting for a fairer Welfare Reform Bill Today the Welfare Reform Bill is being debated in the House of Lords, before the changes suggested by Peers are discussed by MPs again in the House of Commons tomorrow. - 30 January 2012
Gold standard of care outlined by the NHS The NHS is moving closer to developing a 'gold standard' service for patients with a neuromuscular condition through their draft service specification for specialised neuromuscular services - 28 January 2012
Local campaigners lead fight for more specialists Thanks to the dedication of people like Tony Lewis, whose son David had muscle disease, there is now an NHS led Neuromuscular Steering Group, spearheading plans to boost levels of specialist care across the region. - 26 January 2012
Bringing parents together Muscular Dystrophy Campaign launches support network aimed at getting parents with a child with a neuromuscular condition talking with other parents in similar situations. - 26 January 2012
Newborn screening under the spotlight in Parliament Newborn screening for Duchenne muscular dystrophy was the focus of an All Party Parliamentary Group for Muscular Dystrophy meeting yesterday. - 24 January 2012
Government to seek public views on allowing prevention of mitochondrial diseases The Government has asked the HFEA to seek public views on a type of IVF designed to prevent mitochondrial diseases being passed from mother to child - 24 January 2012
Training days to support schools We are pleased to announce that we'll be hosting a series of School Training Days for professionals either working in education or with schools, who support children with muscular dystrophy or related neuromuscular conditions. - 19 January 2012
Community fundraiser recognised for achievements Safi Rehman, who has been praised for her fundraising work in the community, tells us why she knows that she is doing everything she can to fund research
